Diaries of The Breadman’s Daughter: Unfinished Business.

IMG_0676It was inevitable. Bound to happen. I’d reach a certain age and life stage.  Then bam. Smack. Thump. I’d start thinking about unfinished business.

Well here I am. Signed. Sealed. Delivered. Right on track.

On the one hand I think, ‘Yay for me. Look at all I’ve done. Little Miss Smarty Pants.’  Then the grim reality sets in. The ugly truth. The road ahead is shorter than the road behind.  Then I think, ‘I’m just getting started. I haven’t done anything yet.  Shit.’

Age and stage notwithstanding, two things over the past year triggered this obsessive unfinished thinking.  E’s cancer diagnosis.  And a painting of Ma’s that I pulled out of storage.

Dealing with E’s cancer has brought me to my knees on more than one occasion.  I’ve felt a rainbow of emotions.  From fear to anger to sadness to joy.  And now gratitude.  This experience has reminded me of the fragile and fleeting nature of life.  How quick it all passes.  The cliche is true. Time flies.  Especially the older you get.  I can barely catch my breath on some days. I just want to scream, ‘slow down!’  I want to freeze frame the good stuff.  Fortunately, the older I get the more I realize it’s all good stuff.  Regardless of how it may appear on the surface.  I want to hold on tight.  Squeeze the life out of every last thing.

I’m overwhelmed at times by the immensity of this thing called life.  The fact that we’re here at all is utterly astonishing when you think about it.  Big bangs and creation debates aside, it’s mind blowing.

Then there’s the insignificance of my little life in the grand scheme of things. My humble place in this mysterious cosmic eternal universe.  We are all less than a blip on the radar of time.  Practically nothing.  Or perhaps not?  Why are we here anyway?  I don’t know.  But I want to know.  This, and the answers to about a million other philosophical and spiritual questions.  I’m a seeker.

I’m pretty sure that this pursuit will be the biggest business I’ll leave unfinished.

Then there’s Ma’s painting.  The unfinished one.  I found it in the attic at 204 after she died.  Vibrant yellow and orange color streaks across the canvas with etherial wisps and airy brushstrokes.  From a distance it looks finished.  A bit abstract for Ma’s typical style, but done. It’s only when you get up close that you see that it isn’t finished at all.  Not by a long stretch.  You can see that the yellow and orange were just the beginning.  The first few layers.  The background for the real painting.  Up close you can see the pencil marks where she had sketched in the foreground images.  The Sleeping Giant on the horizon.  Sail boats reflected in the water.  I don’t know for sure.  I only know that this painting was intended to be so much more than what was left behind.

Over the past year, I have spent time contemplating this painting.  I have struggled with the desire to finish it.  Complete this one little piece of her work here on earth.  But I won’t.  This is her unfinished business.  Not mine.  And quite frankly, none of my business.

But this painting is a gentle reminder of all the things that are my business to finish.  Truth is, I know I will go to my grave with tons of things left undone.  Not sure I’m okay with that.

Ironically, I love lists but I’m not a bucket list person.  At least not in the formal sense, with an actual physical list.  Like the one I make at work every day. I think I’m too lazy to sit down and compile such a thing.  Or maybe mine would be too long.  Endless.  From here to eternity.  It would take me forever.  When people talk about checking something off their bucket list, I’m perplexed.  Where do they find the time to both make the list and do all that shit on it?

Having said all that, I do have things I still want to do.  I also have things I wish I had done when I was younger.  These are the things that require a much more youthful body and brain.  C’est la vie.

So I focus on what I can still do.

Instead of attempting to accomplish, achieve, attain or actualize, I focus on what really matters.

When do I start?  Here.  This place.  This present moment.  As much as possible, I try to stay in the now.

What can I do right this minute to have a more meaningful life?  It doesn’t matter.  Meaning can be found in anything. And everything.  Doing the laundry.  Mowing the lawn.  Climbing a rock.  Soaring from the top of a mountain.  Lying on my back gazing at the sky. Kissing my love goodnight.  Holding the hand of the broken hearted.  Eating spaghetti. Writing a song. Running barefoot through the grass. Standing still.  The list is endless.  And very personal.  That’s the supreme beauty of it.

Who can I surround myself with?  Who are my people?  My tribe?  My dear ones?  They’re already here. Every last one of them.  And more will come.  Some will leave when our business together is done.

Where do I need to be to make a difference in the world?  Make it a better place than when I arrived?  Improve someone’s life, even in the smallest way?  Everywhere. Anywhere. People need help all over the place.  In my own home.  At work.  Down the road.  Across the street.  The country.  The ocean.  The earth.

How do I get it done? One baby step at a time. Occasional giant leaps.   Little tiptoes.  One foot in front of the other.  Maybe I’ll strap on a cape or sprout a pair of wings.  I don’t know.  I just know I’m going to die trying.

Why bother with all of this hullabaloo? Why not?  Just because.  That’s all I got.

I’ll take a crack at some dreams.  Hatch a few more schemes.  Make a new plan or two.  Write another story.  Wish upon a star.  Cause a ruckus.  Blow out a few more candles on the cake.  And keep going down the road.  For as long as I’ve got.

Will I die with some business left unfinished?  Most undoubtably so.  I am a work in progress, after all.

Just like Ma’s painting.

Diaries of The Breadman’s Daughter: 1 Million Likes and My Dad will Quit Smoking.

IMG_1700In an earlier post I shared some of the things I was angry about since this dance with the Big C began last fall.  Mostly bat-shit crazy, Mad Hatter things that have been overwhelming and downright mystifying.  The bubbling brew of oozing gooey undisguised and unrestrained emotions.  My psychological backpack is already jam-packed, yet I continue to gather more of these sour candies with each passing day.  It’s been a real slice and I am grateful to everyone who is on the road with me.  I’m especially grateful to those with large hearts and even larger compassionate muscles who haven’t judged.  Just walked the mile in my moccasins.

One of the big things I have wrestled with in this messy muddy life I lead is that there is just no way to sanitize these emotions. I wish I could.  But the truth is, they are there.  Maybe they always were and E’s cancer just brought them roaring to the surface. Demanding that I take note.  So I have.  And the thing is, I can’t paint a pretty picture.  Won’t even try.  All my life I have been referred to as “such a nice person.”  Well, there isn’t anything nice about this.  None of it.  So if you will indulge me one last purge, one final rage, one more dump about anger, then I think I’m done here.

Warning: Some of you may want to quit reading at this point.  No hard feelings. This isn’t for everyone.  I get that. You can move on and read the blogs about flour-free recipes or how to make a tee shirt from toilet paper.

There is one colossal thing that I’ve been livid about for years.  It trumps all those other things I’ve been mad about.  Makes them seem almost trivial.  Not even deep enough to be superficial. It’s the Big Kahuna of piss-offs.  I intentionally left it out of my first rant because it’s been such a sensitive thorn in my side.  And believe it or not, I was still trying to play nice in that post.  But since this is the final puke-up, here goes.

E smoked.

Not casually.  Not after dinner.  Nor while on vacation.  Not like those rare birds who bum smokes at parties but never indulge otherwise. It wasn’t a bad habit he picked up late at night while playing in bands.  E was a hard-core smoker from the time his was nine years old.  He chain smoked. Tons. It was the first thing he did when he got up in the morning and the last thing at night.  If he couldn’t sleep he got up and had a cigarette. It comforted him in ways I never could.  It was his best friend. An extension of his yellow nicotine stained fingers.

No one knows with 100 percent certainty that smoking was the cause of his disease. Even the doctors who treated him, and the nurses who cared for him, left the door open for other possible explanations.  Cancer does strike randomly.  Nonsmokers get lung cancer.  Health nuts, who only eat organic foods and run ten miles a day, get stomach cancer.  People who wear big floppy hats and cover themselves in gobs of suntan lotion get skin cancer.  We know this to be true.  Stress and inflammation are often at the heart of many diseases, from head to heel.  I get this.

But here’s the two thousand pound elephant in the room.  E stuck a carcinogenic substance in his mouth for 45 years, every day, all day.  He has mouth cancer. Mathematical equations aside, odds are cigarette smoking most likely caused this thing.

And I’m mad as hell about that.

Before our daughter was born I begged and pleaded with E to quit.  Once M was here, I tried every manipulative trick in the book.  Of course, intellectually I knew this had to be his decision. He had to hold his own come to Jesus meeting.  I had no control over this.  I understood addiction. Having grown up with an alcoholic father and personally battled with uncontrollable sugar cravings my entire life, I knew what misery looked like.  I’d grovel and drag myself through the mud just for an O’Henry Bar. I know what it’s like to wake up in the middle of the night needing to feed.  I will always be a sugar addict, whether I eat the stuff or not.  I’ve also smoked.  I know how hard it is to quit. I bawled like a baby for two weeks solid the last, and final, time I quit.  It was pathetic.  Not one of my more graceful and exemplary times.

Because I knew intimately how difficult quitting smoking could be, I exercised as much compassion and understanding as was possible with E. But I’m only human after all.  And I have my own crap to deal with. There was always this underlying resentment about him not quitting.  I often viewed it as defiance.  Not something he couldn’t do.  But wouldn’t.

There were a couple of occasions over the past 20 years where E attempted to quit.  His longest smoke-free period was about four months.  Most of his efforts were futile though.  When it came to quitting, the best he could commit to was “someday.”

Over time, my protests and admonishments ebbed and flowed in volume and frequency.  I also had a comrade, a buddy, a conscientious objector who shared my concerns.  I went from wanting to shield my daughter from a swath of cigarette fumes to having her join me on the protest line.  M and I were a united front on this issue.

At times we were passive aggressive in our objections and disapproval.  Never really coming out and saying, “You’re an asshole for treating this so lightly,” but implying it just the same, in our offhanded comments.  These ran the gambit from the descriptive, “The garage looks like a butt factory” to the succinct, “you reek.”  His habit was bringing out the worst in us.  We were evil twins.

But once E’s mouth cancer was confirmed, no one dared to say, “I told you so.”  We knew there was a good possibility something like this could happen. He was playing a risky game with much at stake.  Sad thing is, E knew it too.  That was the frustrating part.  Just like quitting  might happen “someday” so could getting cancer.

It’s a peculiar thing how love supersedes everything at times like these. Instead of thinking, “I knew this was going to happen.” All I could think about was losing him.  Nothing else mattered.  The cause was irrelevant.

Having said all that, I’m still angry.  At E for not quitting before it came to this.  At his doctor, for not ever suggesting he should quit.  At myself, for not being more persuasive, not fighting hard enough.  At God, for not answering all those millions of prayers.

Pointless self-flagellation.  I know.

One last thing.  All over social media sites, but Facebook in particular, there have been these images of kids holding signs that read something like, “My dad says that if I get 1 million ‘likes’ he’ll quit smoking.”  I didn’t know whether to laugh or cry the first time I saw one of these posts.  For the most part these are scams called “Like Farming”, which can generate tons of money for the owners of those phony pages.  Scams or the real deal aside, I found them disturbing.  Because M and I know the truth.  It will take more than 1 million “likes” to make someone’s dad quit smoking. No matter how much they love you. It just doesn’t work that way. Nothing’s that simple.

I’m angry about that too.

Diaries of The Breadman’s Daughter: Lessons in Gratitude and Patriotism.

IMG_1825Grateful and patriotic.  That’s how I felt last weekend when E and I escaped again to the mainland.  This time there weren’t any medical procedures tagged onto the end of our trip.  No Big C cloud hovering over our heads like an alien space ship.  Just two glorious days of freedom and fun with our oldest daughter A.  Quite simply, it was divine. And exactly what the doctor ordered.

I like to keep an attitude of gratitude. I’m happier and far more optimistic when I do. Life just feels richer and amplified when I see the glass half full. This thankful continence isn’t always easy to maintain though.  Sometimes I engage in rip-roaring pity parties of one. But most of the time I count my blessings.  And they are many.

Last Saturday afternoon, smack dab in the middle of a busy crowded downtown Vancouver street, I had an epiphany.  The sun was shining gloriously overhead.  The energy and positive vibe in the city was electric.  Music and laughter, breezy summertime conversations, and the smell of suntan lotion wafted from every street corner.  It was picture perfect.  Endorphins flooded my limbic system, and by doing so released a profusion of happy childhood memories of summers at 204. In an instant, I was as lighthearted and mirthful as a ten year old girl running under the garden sprinkler. Yippee!  It doesn’t get much better than that.  Another neat thing happened in that moment. My gratitude muscle expanded and skyrocketed, then soared heavenward through the brilliant clear blue sky.

Giddy with glee, I turned to E and said, “Life doesn’t get much better than this.”

He looked at me as if I had suddenly grown two heads. I fully appreciate why he would find my declaration untrue, given the circumstances of our life right now.  But before he could protest or disagree, I repeated, “Life doesn’t get any better than this.  In this cosmic moment, which is all we have, life is perfect. Just the way it is.”

Then he got it.  His eyes welled with tears and he smiled. Big honest smile.  Right from the heart. One filled with gratitude.

Later that day, our daughter took us to a baseball game at the Nat Bailey Stadium, where the Vancouver Canadians and the Tri-City Dust Devils were playing. I can’t think of a more definitive summer diversion or pastime than going to a ballgame.  Some people find this game boring. Too quiet and slow.  But for me it is beautiful.  Elegant. Subtle and masterful. First and foremost, a team sport.  Yet each player has a time when they stand alone at home plate.  Armed only with a wooden bat, years of practice swinging it, the sagacity and the wits of a street-fighter, the indelible voice of their coach always with them, the encouragement of their team mates, the cheers of their devoted fans, and the genuine love of the game.  It is there that each player, one by one, bravely faces the nine guys from the opposing team, all focused on the same thing. Stop this guy from getting a run.

My love of the game goes way back.  The Old Man loved it too.  He was one of the guys who started Little League in our hometown.  He coached and umpired games well into his senior years. When I was young, I used to tag along and sit in the weather-beaten wooden bleachers and cheer on ‘our guys.’  It was during those long hot steamy Northwestern Ontario summer nights, that I fell for the game and the boys who played it. During my Toronto years, The Old Man loved visiting, especially in the summer.  Going to a Jays game was a dream come true for him.  To see a major league game close up and personal was beyond his wildest imaginings.

The Nat Bailey Stadium is gorgeous.  Most people wouldn’t describe a sports stadium this way. But to me it is. This was my first time, and like many firsts, it was memorable and I loved everything about it.  The pre-game excitement, the smell of popcorn and hotdogs, pizza and beer, cotton sundresses and pink cotton candy, fans in red tee-shirts and baseball caps, flip-flops flapping up and down concrete steps, hoots and hollers across the stands, the red wooden bleachers with perfect views of the field, the calls from the beer guy and the fifty-fifty girl, the playful fan photos taken with Bob Brown Bear, the cornball music, the repartee and easy banter of the announcers, the pre-game warm-ups, the national anthems, and the crack of wooden bat on leather ball.  Gorgeous.  Every last bit.

Before the game begins two national anthems are sung.  I don’t recall the name of the singer only that she gave a virtuoso performance.  Flawless. Resplendent. A crackerjack job. I love the American anthem.  It’s impressive and majestic.  But I’m a Canadian girl.  Through and through.  Tried and true.  Homegrown, born and raised.

From the very first note, when this crowd of devoted Vancouver Canadians fans stood shoulder to shoulder, hats in hand, young and old alike, and gloriously sang our national anthem, I was moved. Unexpectedly touched yet filled to the brim. With patriotism. With pride. With gratitude.

Oh Canada.  Dear sweet Canada.  My home and native land.  I am so grateful to be here.

Diaries of The Breadman’s Daughter. Mad as Hell.

Scary FaceThis post comes with a WARNING.  What you’re about to read may make you uncomfortable.  Or mad.

I’m mad.  Mad as hell.  What do I do with all this seething anger?  I could hold it in.  Suppress it like an unpleasant sneeze.  I could let it fester, bubble and boil for the rest of my life. Or I could just dump it here.

Sometimes, not all the time, but sometimes this Big C walk with E is way more than I signed up for.  I want to be the Good Wife.  The benevolent devoted soul mate.  I do.  But I’m not.  Don’t get me wrong, I am kind, compassionate and caring.  But there are times when the fire breathing dragon and the monster under the bed emerge.

What am I angry about?  That’s the thing.  I don’t even know half the time.  Everything and anything.

Am I surprised by the anger?  Absolutely.  I didn’t expect this.

It hasn’t simply been a steady build. Or slow burn. A crescendo ending with a crashing forte of rage.  Random acts of anger.  Unexpected outbursts.  Irrational displays of irritability.  Non-stop wrath or fury.  Annoyance or aggravation.  It has been all of these things. Thankfully not all at the same time.  But there are days where I simply move from one crappy angry emotion to the other.

Quite frankly, I can’t pinpoint what has my dander up and caused my blood to boil.  Why I see red.  And often black.

Some of the things I’m angry about make perfect sense.  At least to me.  Like the slowness of the medical process.  A year ago, at his annual check-up, E mentioned this irritation he had in his mouth.  Possibly it was a canker sore or a benign lesion.  Or possibly it was something bigger.  More sinister.  Who knew.  Certainly not us.  We’re not the experts.  This initial ‘mention’ to the doctor was followed by several trips to the neighborhood walk-in clinic where E was given cream to rub on the sore.  Months would pass before a biopsy was performed and a diagnosis given.  That was just the beginning.  More months would pass before his surgery.  A year later and the road ahead is long.  And winding.  Exhausting.  Draped in weary.  I’m angry about this.

Then there are the list of irrational things.  These cover the gambit, the full spectrum of the rainbow, the various degrees and levels of my anger.  Everything from the petty and trivial to the foolish and inconsequential.  The paltry, piddling and pettifogging.  All those shabby emotions that once expressed, or even thought, leave me feeling small, spiteful, mean, and just downright unkind.

Everything bugs me. Going right back to the early days. Until this present moment.

The botched biopsy.  Inconceivable. The breathtaking beauty of the Oncologist. Distracting. The daily crosstown trips to the hospital. Tedious.  The smell on the seventh floor.  Sickening. E’s feeding tube dangling from his nose.  Disgusting. The color blue of his hospital regulation issued PJs. Unfashionable. The ear-to-ear scar on E’s neck.  Frightening.  The size of his tongue.  Unfathomable. The disruption to our daily lives.  Unwanted.  The long lonely nights where sleep was a stranger.  Disturbing.  The lousy meals, fast food and frozen dinners.  Repulsive. The sound of the blender.  Irritating. The clutter, mess, dust and dog fur in E’s man cave.  Infuriating. The smell of soup in the microwave. Revolting. The way E speaks.  Incomprehensible.  The flowers and plants that need planting.  Frustrating. Taking out the garbage and doing the recycling. Enraging. Doing chores that E used to do. Exasperating. Being nice.  Impossible.

How could I think, feel, say such nasty things?  I don’t know.

I wish I could be more like Mother Theresa. All saintly and good.  But I’m not.  I’m Helen Keller before Anne Sullivan came into her life.  Groping in the dark. Punching the air. Kicking and screaming at anything unfortunate enough to cross my path. I stumble carelessly into the abyss.  I hiss and curse unapologetically. I breathe fire.  Rant and rave like a freaking lunatic.

I do all that. Then I have the audacity to shed my skin like a snake.

And start anew.

Diaries of The Breadman’s Daughter: Alphabet Soup of Emotions.

40456_420805066265_3600090_nI feel so many things. I’m a mixed bag of sentiments since this cancer thing with E began.  Maybe like Lady Gaga, I was born this way.  And E’s illness has just magnified, and brought to the surface, this alphabet soup of emotions.  I’m all over the place.

Soaring with the angels one minute and groveling in the mud with the devil the next. Optimistic star gazer.  Down in the dumps. Trashy and foul-mouthed.  Elated and deflated. Giddy from good news.  Depressed by delays and dark days.  Happy as a clam before it’s tossed in the chowder.  And overwhelmed by inconsolable grief.  Frightened out of my skin.  Fierce as a mother lion. A Warrior Girl.  And a motherless child. Whimpering and whining.  Feeling abandoned and sorry for myself.  Mad as hell. Patient as a saint.

I am all these things. I feel it all. Every stinking last one.  Every glorious sensation.

And I do not apologize.

These feelings are all part of this very human fragile, and yet magnificent, journey that I am on.  I own it all.  The messy and the sublime alike.  From A to Z.

A = alone + abandoned + angry + afraid + appreciated + alive
B = bad + brave + bored + bold + bitter + bitchy + beautiful
C = courageous + crappy + caring + crazy + confused + cheerful
D = depressed + deflated + despondent + despairing + determined
E = elated + excused + evolved + enervated + exhausted + energized
F = forgotten + fatigued + failure + fucked + frazzled + funny + feisty
G = good + grateful + gritty + gone + giving + giddy + glum + gutsy
H = hungry + happy + harried + here + hopeless + helpful + heroic
I = impossible + indifferent + irate + indignant + invisible + incapable
J = justified + jittery + juggler + juvenile + jackass + jealous + joyful
K = kind + keeper + knowing + knotty + kooky + kickass
L = lonely + lost + loser + loved + large + leaving + last + loving
M = messy + monstrous + meek + moved + mad + magnificent
N = nothing + nasty + numb + nowhere + neglected + nice
O = open + outcast + off + old + offensive + overloaded + optimistic
P = painful + picky + pretty + pathetic + pessimistic + patient +  plucky
Q = quiet + quitting + quarrelsome + queer + quirky
R = reasonable + raw + ready + revolted + rejected + redeemed
S = sad + silly + shitty + small + sorry + self-righteous + strong
T = terrible + tiny + tearful + tenuous + tight + tragic + tired + tough
U = unsettled + upset + unloved + unnoticed + used + ugly + up
V = vulnerable + vacant + vague + vain + victorious + valued
W = worried + weak + wanting + wonderful + weepy + warrior
X = x-rayed + xeroxxed + x-rated
Y = yearning + yucky + yappy + yeller + yellow + yummy
Z = zombie + zapped + zilch + zero + zip

Diaries of The Breadman’s Daughter: Waiting Rooms.

Some days I feel dark.I have become intimate with waiting rooms over the past few months.  But none have gotten under my skin so deeply as the one at the Cancer Agency where E had the PET scan.

It was a small crowded room packed with patients waiting to be tested and their respective support groups.  And me, the consummate Groupie.  We got there early so there was ample time for E to fill out the intake form and for me to get restless and bored.  The chairs were stiff and awkwardly close.  The lights were unbearably bright.  Mocking and cruel. The air was weary. This was not a place to linger nor languish.  Here, you waited, got it over with and then got the hell out.

We waited.  And waited.  Waited some more.  At one point, I fell asleep and may have snored, ever so slightly.  E gave me a little love nudge.  I bolted upright and looked around, momentarily confused by my surroundings.  Oh yes, we’re still here I thought.

E’s name was called precisely at the appointed hour.  I gave him a quick peck on the lips, squeezed his hand and watched as he followed the nurse through the heavy metal double doors.  What lay beyond was all a big mystery to me.  I wanted to keep it that way.  Others had gone before him and they all came back okay.  So would he.

I settled in for the 2-hour wait.

I managed to read a few pages from The Color of Water before succumbing to the call of slumber.  My eyelids fluttered and slowly closed.  My head sagged heavily onto my chest like a two hundred pound pumpkin.  Not a pretty sight.  In the end, it was the drool trickling from the corner of my mouth that brought me back to wakefulness.  I wiped my chin with the back of my gloved hand, closed the book and slipped it into the side pocket of my purse.

Then I did what I do best.  Observe.  Witness.  Listen.

There was a painfully thin older woman in her seventies surrounded by her family, who were helping her fill out the daunting intake form.  Her son patiently went through the form question by question. Sometimes answering for her.  And like E and I, sometimes guessing at questions with possible multiple answers or ones that simply didn’t make sense. Close enough was good enough.

There was the young man waiting for his beautiful wife.  She was one who had gone through the double doors before E. When she emerged, he jumped up and was immediately at her side.  “Ah, my beautiful wife,” he declared as he kissed her cheek and took her hand. They sat in the hallway together for a moment, holding hands.  Then he returned to the admitting desk with questions about the “reports to the doctor.”  “Would they get copies as well?” he asked.  Once assured that all was in order, they left. He, with his arm around her waist, and she, with her head snuggled into the sweet spot in his neck.  It took my breath away.

There was the athletic looking woman with the grey hair and backpack slung over here shoulder.  She stood next to the wall with her equally fit friend and made arrangements to meet up afterwards.  There was the heavyset woman who sat quietly knitting.  The middle-aged man in the leather bomber jacket and faded jeans reading the paper.  The teenage boy with the headphones and rapper-style hip-hop jeans, who paced the hallway in step to the music he was listening to.  The young happy bubbly girl barely into her teens, who greeted her anxious parents with a big smile and a reassuring, “It wasn’t that bad.”

And there were others too who came and went during my wait that dreary afternoon in the middle of February.  All there for the same reason.

As I write this, my eyes well with tears at the memory.

The Big C is an equal opportunity invader.  It strikes randomly and carelessly.  Unapologetic and audaciously so.  Old women confused by the questions on forms.  Girlfriends with backpacks and sensible walking shoes.  Beautiful young wives with handsome thoughtful husbands.  People killing time by reading newspapers and books.  Knitters of scarves and baby blankets.  Middle-aged men in denim and leather.  Young teenagers, whose walk on this earth too new to leave footprints.  And yes, even bluegrass musicians who play the upright bass with passion and heart.

The rich.  The poor.  And everything in between.  The happy and optimistic.  The pessimist and naysayer.  The sad and lonely.  The newborn and the ancient one.  There are no precise demographics. No one can pinpoint the target audience.  By touching us all in some way, the whole thing seems so common. Perhaps that’s the divine irony.  There are no favorites here.

The thing that struck me the most while I was waiting.  Hit me in the gut so deeply and profoundly. It was what all these people had in common that I did not possess.

Bravery.

Take that Big C and shove it where the sun don’t shine.

Diaries of The Breadman’s Daughter: His Mother’s Name was Bessie.

beautiful bessie

Beautiful Bessie, the Bass Man’s Mama.

I’m taking a break from the all consuming Big C conversation for just a moment to share this bit about a sweet lady, E’s Mama Bessie.  He misses her dearly, especially now when confronted by the fragility of life.

On the day before 94-year old Bessie died, she announced to her younger son Larry that she was breaking out.

Clear out of the blue.  A declaration of independence so foreign to her nature that it was unfathomable.  Disarming.

Feeble and frail. Yet in the end, so fierce in her final conviction.

“Where are you going Mom?” he asked

“To New York City!” she proclaimed.

Bessie, who had never been more than one hundred miles from her small county home.

Bessie, who as a young girl spent a week up on the mountain, just a few miles away, was homesick and fearful.  She pined for her mother.  And missed the familiar valley farmland and apple orchards.  To young Bessie, this overgrown hill was much too high and close to the sky. Too far away from her roots and the bosom of the valley bed. It threw off her equilibrium.  Left her shaken and traumatized for life.

Bessie, whose wanderlust didn’t extend beyond a Sunday drive down to Waterville for lunch with Harlan.

Bessie, who had lost most of her sight and hearing, but none of her unpredictable wit and natural intelligence. To the end, razor sharp and fully loaded with an arsenal of quick retorts.

Bessie, who lived a simple life surrounded by “her people.”  Married Harlan and raised her boys just a stone’s throw from her childhood home.

Bessie, who never strayed far.  Always walked the straight and narrow.  Found dignity in the familiar and commonplace.

Yes, this same Bessie, on the Eve of the trip of her lifetime, revealed that she was now ready to travel.

Godspeed Bessie.

Diaries of The Breadman’s Daughter: The Escape Artists.

A and E grinning from ear to ear at her high school graduation.

A and E grinning from ear to ear at her high school graduation.

Sometimes I just want to escape.  Get away from it all.  Take off. Break out.  I have fantasies about this.  They usually go something like this.

I’m in the truck, or some other vehicle with an automatic transmission, heading towards work or some other obligatory destination.  I come to a traffic light. It’s red. I stop.  That’s when it happens.  Instead of waiting for the light to turn green so I can follow the prescribed relentless path.  Otherwise known as my daily routine.  I hang a right on the red and keep on going.  To where, I don’t know.  My only thought is, I’ll know when I get there.  I briefly consider my family, and those I love.  The ones who clutch and cling and cleave to my hungry heart.  I shake those distracting binding thoughts from my head. Toss the rattling chains to the curb.  I hammer on the gas pedal.  Accelerate.  Take a deep breath.  Off I go.  A free bird.  Untethered.

Of course, I’ve never done that. Like John Donne once said, it’s “a nothing, a fancy, a chimera in my brain.”

This daydream of breaking free had exponentially grown since E received his diagnosis back in December.  Like everything else that had happened since then, I wasn’t the only one looking for some escape hatch.  A magical rabbit hole to dive into. E too was looking for a way out.  Even if just for a little while.  A small respite away from the all-consuming Big C was all we both needed.

So in the middle of February, E and I left town. Split. Vamoosed. Set sail.

The truth is, we didn’t go far and our little escapade had an underlying medical purpose.  But for two full days we were in a cancer-free zone.

It was divine.

On Monday, February 18 E was booked into the Cancer Agency in Vancouver for a PET scan.  This is one big mother of a test.  Head to toe 3D color imaging.  Nothing can hide from its radiating nuclear eyes.  If cancer is there, the PET will reveal it.

That was Monday.  Before that we had two glorious days of fun and play in Vancouver.

Our oldest daughter A lives there so accommodations were taken care of.  What we didn’t expect was the pampering she provided.  We were eternally grateful.  She gave us exactly what the medical profession couldn’t.  Love.  In massive doses.

Saturday night was a “date night” orchestrated by this wonderful girl of ours.  We hadn’t had one of those in ages.  If ever.  E and I didn’t really date. Everything we did was kind of topsy turvy, upside down and backwards.  We met in a country bar, fell in love, found our groove, had our youngest daughter and got on with day-to-day life.

Everywhere we went that weekend, we were enveloped by such grace and love.

We had many close encounters of the angelic kind. Starting with The Fish Shack.  Being both popular and trendy, it was crowded. Filled to the rafters.  No room at the shack for us.  Despite the generous gift certificate from our daughter, we weren’t up to standing in line and waiting to have dinner, no matter how good the food.  But before we could even consider hightailing it out of there, the young restaurant host had a table set up just for us.   Once settled into our cozy table for two, we were greeted by our waiter who was gracious, witty and downright entertaining.  The food was great, but he made the experience extraordinary.  We felt like royalty.

After dinner we strolled arm-in-arm up the street to the Vogue Theatre, where our daughter was working.  She had seats for the early show waiting for us.  It was improv night with Colin Mochrie and TheatreSports.  This was a new experience for both of us.  We’ve been to scads of music concerts and festivals over the years but we were Live Improv Comedy virgins.

They say laughter is the best medicine.  On that particular Saturday night in Vancouver, this cliche proved to be true.  We laughed ourselves well that night.  Not physically.  E still had cancer.  It wasn’t a night for those kinds of miracles.  Seas didn’t part.  Water didn’t become wine.  Yet supernatural things occurred.  Spiritual healing took place.  It was a night of joy.  Merriment.  Glee.  Our spirits were uplifted.  Our hearts lightened.  Worries held at bay.  We were just us.  Not the guy with cancer and his wife.

On Sunday we hung out with our daughter.  She cooked homey comforting food for us.  It was like being back at 204 in Ma’s kitchen.  Brunch and Sunday night dinner.  Sandwiched in between was a trip to Ikea.  We returned to the apartment with shelving, a hanging lamp and other Ikea accoutrements. I languished on the sofa like the Queen of Denial while E and A assembled everything with the infamous Ikea allen key.

I treasure the memory of that evening.  Just the three of us.

It’s funny how you can shut things out when you need to.  For those 48 hours, E and I were free.  Unencumbered.  Immune.  Safe.  The untouchables.   Monday would come soon enough.

As I breathed in the delicious aroma of beef stew simmering on the stove, I thought how wonderful it was that we were here in this place, at this time, with each other.  This made me happy.

It was the perfect gift.

Diaries of The Breadman’s Daughter: Today.

E relaxing by the pond with Coco and Rusty.

E relaxing by the pond with Coco and Rusty.

I usually like to keep a bit of time and distance between me and the stories I tell.  Sometimes years like I have with the Diaries of The Breadman’s Daughter.  With others, it’s weeks or months like this blog about me and E and the Big C. This is the psychological and emotional space I need to tell a good story.  It’s the way I work.

Time allows me to separate myself from the story so that it doesn’t erode into sentimental sop.  Don’t get me wrong.  I love a good tear jerker.  I just don’t intentionally write one.  I’m not here to emotionally manipulate.  It is my desire to share what I know, what I’ve learned on this journey.  At best, it may only be an enjoyable read.  At worst, a waste of time.  But if it informs and illuminates, touches a heartstring, resonates with some truth you hold dear, then I’ve accomplished more than I could have hoped for.

My story is your story.  We’re all in this together after all.  You may not have cancer, nor be married to someone with it.  You may be lucky and this disease hasn’t touched your life in any way.  But I doubt it.   That’s not the point.  This isn’t about the disease, you see.  It’s about two people and their family and friends and community.  It’s about you and me.  All of us.

Oh yes it is my dear ones.

Because we’re all human and this is a very human story.  Not a tragedy.  Although sometimes it is heartbreaking.  It is often fraught with folly.  And great big belly laughs.  Tears are shed.  Curse words are spat like mouldy grapes.  But there’s a whole lot of loving going on too.

So today, Saturday, April 6, exactly four months after my world was rocked I am going to do something I typically don’t do with my storytelling.  I’m telling you how it is now.  On this day.  No time.  No distance.  No space between me and the story.

This morning E and I were in the kitchen making coffee and chatting idly about the things we had to do today.  For reasons I’m not even certain of – maybe I was born with it or maybe it’s Maybelline – I turned to him and said the following:

“I know nothing can compare to the way you feel.  Part of me can’t even imagine.  But I just want you to know that for the people closest to you.  It feels horrible.  Awful.  Everyone expects you to feel like crap. You’ve got cancer for Christ sakes. But I feel like crap too.  I’m worried and exhausted.  I’m so depressed.”

E slumped in the chair and said, “I’m worried too.  I wake up at three in the morning and I can’t sleep.”

“Neither can I,” I snapped.

But what I wanted to say and couldn’t because he’s the one with cancer and that trumps everything: “You just don’t get it. Yes, you have the disease, but you don’t have a monopoly on feeling bad.”

“I’m depressed,” he sighed.

“Some days I feel like I’m hanging on by my fingernails.”

And that was the end of the conversation.  Maybe hanging on by your fingernails trumps everything.

There you have it.  Four months in and the truth is, we both feel like crap.  Not all the time.  The mornings are the worst.  Fortunately life distracts us.  We carry on.  Get on with it.  Try not to wallow.  Nor allow this thing to swallow us whole like a snake eating a rabbit.  Take the best part of us. We ‘do not go gentle into that good night.’

This afternoon we took our dogs for a walk around the lake.  It was good.  As we walked the trail, I breathed in the beauty of the world surrounding us.  The trees were green with newness.  Life was exerting itself everywhere. Hope filled the clouds above.  The breeze whispered sweet nothings in our ears.   You have today, it said.

There wasn’t a trace of cancer anywhere.

Diaries of The Breadman’s Daughter: Take Two. Let’s Try This Again.

E and his band mate A wait to go on stage.

E and his band mate A wait to go on stage.

Sometimes I just want to start over. Tear out the page. Crumple it up.  Toss it into the nearest garbage can. Press delete. Delete. Delete. Begin again. Change everything. Rewrite the story.

Never have I wanted to do this more than with this story about E.

After the holidays, we settled back into our old familiar routine.  The one we enjoyed before the thunderclap of cancer struck. It was as if all that crazy-making stuff never happened.  Monday to Friday focused around our work.  Weekends were filled with errands, chores, family meals, music and church.  Smack dab in the middle of January we celebrated E’s birthday with joy and profound gratitude.  After the roller coaster ride of December this mundane life of ours felt good.  Humdrum was welcome.  The unremarkable everydayness had lulled us into believing that things were back to normal.  It was life as usual.

Not so.

Truth was, E’s appointment with the Radiation Oncologist was scheduled for the end of January.  There was no denying, nor getting around that.  This was “the meeting” where we would get the lowdown on this scary disease that had invaded E’s body.  The results of the CatScan and the biopsy would be explained to us.  This was where rubber would hit the road.

The Cancer Agency sent E a package of information to prepare him for this meeting.  He filled out the forms, read the brochures, watched the DVDs and composed a list of questions.  I borrowed a snazzy digital recorder from one of my colleagues to tape the session.  We were prepared.  At least so we thought.

I met E at the Cancer Centre on the afternoon of his appointment.  It was a mad rush from work to the Centre with five minutes to spare. I flopped down in the seat next to him expecting a long wait.  My plan was to scarf down a sandwich before meeting with the Oncologist.  Two bites into my cheese and lettuce and we were called.  I quickly stuffed the sandwich back into my bag and followed E and the intake nurse into “the room.”

We exchanged pleasantries with the nurse while she took E’s temperature and checked his blood pressure.  A few minutes later the Oncologist appeared.  It was one of those jaw dropping moments.  She was nothing like what I was expecting.  I was thinking someone more like Einstein or the original Dr. Who.  Someone who looked like they could cure cancer.  Not pose for the cover of Vogue.  She was drop-dead gorgeous.  Tall, slim, perfect skin and hair.  Beautiful smile.  Stylishly dressed from head to toe.  And by toe, I mean kick-ass high black leather boots.  She was lovely in every way and immediately put E and I at ease.

I switched on the recorder.  She began with a round of standard questions to determine E’s overall health.  What other things besides the mess in his mouth were causing him grief.  E rhymed off the litany of ailments that had been hurting, aching, paining, irritating and gnawing at him over the past two years.  It reminded me of the Skeleton Song we all sang when we were kids.  With the toe bone connected to the foot bone.  Was there anything that didn’t hurt I wondered?

After the inquisition, the Oncologist probed and prodded his neck and throat checking for lumps and bumps.  Looking for signs.  Was the cancer on the move?  Spreading like wildfire to the rest of his body or behaving itself and staying contained in the front of his mouth?

Modern medicine is full of wonders to behold.  Technological marvels that are mind-blowing.  Like the probe that allowed us to see inside E’s nose and throat.  More like science fiction than science seeing this strange interior world so close-up and personal.  Beyond the uvula. It reminded me of the Biblical story of Jonah and the whale.

After the examination the doctor discussed “the next steps.”  This took both of us by surprise. We thought we’d be leaving with a surgery date and a pep talk on how this would soon be behind us.  A little inconsequential blip in our lives that would be over with a quick snip and a stitch.  Not next steps.

E wearing one of his favorite Hawaiian shirts.

E wearing one of his favorite Hawaiian shirts.

What we quickly learned was that the results from the CatScan and biopsy weren’t one hundred percent definitive.  Inconclusive.  They didn’t know the full extent of the disease. Whether it had spread to other parts of his body.  So this uncertainty meant more testing.  Big Kahuna examinations.  MRI and PET Scan.

The drive across town to home was dismal.  Again I was alone in the truck.  A Gloomy Gus.  Consumed with worst case scenarios.  The wind had just been kicked out of our sails.  We had just spent the month believing that things were going to be okay.  E was back to normal.  He was feeling great.  Healthier than he had in a long time.  This wasn’t such a big deal, we thought.  Certainly not deadly.  Nothing to worry about.  A piece of cake.  Walk in the park.

For two smart people, we were seriously naive when it came to the Big C.

Back at the house, E and I spoke briefly about the appointment.  I asked him how he thought it went.

“Not good,” he said.

Then I knew we were in big trouble.