Diaries of The Breadman’s Daughter: Tick Tock.

The clock on the wall keeps ticking.

The clock on the wall keeps ticking.

Start. Stop. Slow down. Speed up. Wait. Proceed with caution. The traffic signs of the Big C trip. We’re forced to walk when all we really want to do is run.  For our lives.  Things take time.  There’s a process.  Procedures to follow.  We get it.  But we’re also scared out of our minds.  The Big C clock is ticking.  And we don’t know if we’re running out of time.  The meticulous orderly pace is excruciating.  Never fast enough.  At least not for me.

When we returned from our weekend getaway, things moved swiftly at first.  We arrived home late Monday night and by Wednesday afternoon we had the results of the PET scan.  The cancer was localized.  Just below the tongue. Our greatest fears, that E was riddled with cancer from head to toe, were banished.  We were grateful and did the happy dance. High fives all around.  Big sighs of relief could be felt from coast to coast.

Three weeks later E met with the Surgeon, who examined his mouth and discussed his role in the upcoming surgery.  Because this would be a 2-surgeon job, eight days later E met with the Plastic Surgeon.  At this point, it was exactly one month since receiving the results of the PET scan.  To a cancer patient and his family this is an eternity.  With each passing day I grew more anxious.  My mind went to its dark place, that cavernous dwelling filled with irrational horrors.  All the ‘what ifs’ were examined. I snooped under every rock and coaxed all the scary monsters out.  My thoughts Teased and taunted. It was crazy-making at its finest.

I think E was scared too.  In between surgeon appointments he was baptized.  This was something he had been contemplating for a few years but he became obsessed with the notion after the diagnosis.  He wanted to come right with God.  Get things sorted out between the two of them. The surgeons could heal his body but only God could repair his brokeness. This would be his first step towards spiritual healing.  Truth is, it was more of a first dunk then a step.  I can only describe it as a full backwards drop into the watery depths, John the Baptist style. E emerged gasping for air.  Regenerated.  Renewed.  Reborn.

The triad of Divine Es – elation, euphoria and exaltation – wouldn’t last long.

The meeting with the Plastic Surgeon brought E to his knees.  Shaken.  Shattered.  Scared out of his wits.  Later that evening, he described the procedure.  He shuttered and shook his head as relayed the gruesome details.  I thought I was going to throw up.  The surgery wasn’t going to be pretty.  Lot’s of cutting skin and veins here, and moving them there, and then there, and there.  Visions of Roger Ebert danced through my head. Enough said.

The day after the meeting with the Plastic Surgeon, E’s Mama died.  He got the news at 7:00pm on the Thursday and was on a plane to Nova Scotia the next morning at 8:00. He spent a week with his family and friends, buried his mother and was back on the Westcoast by Good Friday.  The next evening his band performed at a Bluegrass Fundraising event.

It was the last time he would sing.

E’s surgery was booked for May 6, which seemed like light years away. Everything was moving in slow motion.  To us, the medical world was dragging its collective feet. Our anxiety eclipsed their tempo.  We felt like lab rats scurrying through a maze of white coats and mysterious technology. Humming machines.  Little cogs caught in the big wheel.  Dancing on peanut butter.  Plenty of action but really going nowhere.

E was diagnosed the first week of December, met with the Radiation Oncologist the end of January, had the PET scan in the middle of February, met with Surgeons in the middle of March and would have the operation on May 6.  When someone you love gets the Big C diagnosis you just want the “evil” extricated from their body.  We all wanted it out.  Like Lady Macbeth, I cried, “Out, damned spot.  Out. I say!”

Yes, I’ll admit, a bit dramatic.  But still.

Diaries of The Breadman’s Daughter: Alphabet Soup of Emotions.

40456_420805066265_3600090_nI feel so many things. I’m a mixed bag of sentiments since this cancer thing with E began.  Maybe like Lady Gaga, I was born this way.  And E’s illness has just magnified, and brought to the surface, this alphabet soup of emotions.  I’m all over the place.

Soaring with the angels one minute and groveling in the mud with the devil the next. Optimistic star gazer.  Down in the dumps. Trashy and foul-mouthed.  Elated and deflated. Giddy from good news.  Depressed by delays and dark days.  Happy as a clam before it’s tossed in the chowder.  And overwhelmed by inconsolable grief.  Frightened out of my skin.  Fierce as a mother lion. A Warrior Girl.  And a motherless child. Whimpering and whining.  Feeling abandoned and sorry for myself.  Mad as hell. Patient as a saint.

I am all these things. I feel it all. Every stinking last one.  Every glorious sensation.

And I do not apologize.

These feelings are all part of this very human fragile, and yet magnificent, journey that I am on.  I own it all.  The messy and the sublime alike.  From A to Z.

A = alone + abandoned + angry + afraid + appreciated + alive
B = bad + brave + bored + bold + bitter + bitchy + beautiful
C = courageous + crappy + caring + crazy + confused + cheerful
D = depressed + deflated + despondent + despairing + determined
E = elated + excused + evolved + enervated + exhausted + energized
F = forgotten + fatigued + failure + fucked + frazzled + funny + feisty
G = good + grateful + gritty + gone + giving + giddy + glum + gutsy
H = hungry + happy + harried + here + hopeless + helpful + heroic
I = impossible + indifferent + irate + indignant + invisible + incapable
J = justified + jittery + juggler + juvenile + jackass + jealous + joyful
K = kind + keeper + knowing + knotty + kooky + kickass
L = lonely + lost + loser + loved + large + leaving + last + loving
M = messy + monstrous + meek + moved + mad + magnificent
N = nothing + nasty + numb + nowhere + neglected + nice
O = open + outcast + off + old + offensive + overloaded + optimistic
P = painful + picky + pretty + pathetic + pessimistic + patient +  plucky
Q = quiet + quitting + quarrelsome + queer + quirky
R = reasonable + raw + ready + revolted + rejected + redeemed
S = sad + silly + shitty + small + sorry + self-righteous + strong
T = terrible + tiny + tearful + tenuous + tight + tragic + tired + tough
U = unsettled + upset + unloved + unnoticed + used + ugly + up
V = vulnerable + vacant + vague + vain + victorious + valued
W = worried + weak + wanting + wonderful + weepy + warrior
X = x-rayed + xeroxxed + x-rated
Y = yearning + yucky + yappy + yeller + yellow + yummy
Z = zombie + zapped + zilch + zero + zip

Diaries of The Breadman’s Daughter: Waiting Rooms.

Some days I feel dark.I have become intimate with waiting rooms over the past few months.  But none have gotten under my skin so deeply as the one at the Cancer Agency where E had the PET scan.

It was a small crowded room packed with patients waiting to be tested and their respective support groups.  And me, the consummate Groupie.  We got there early so there was ample time for E to fill out the intake form and for me to get restless and bored.  The chairs were stiff and awkwardly close.  The lights were unbearably bright.  Mocking and cruel. The air was weary. This was not a place to linger nor languish.  Here, you waited, got it over with and then got the hell out.

We waited.  And waited.  Waited some more.  At one point, I fell asleep and may have snored, ever so slightly.  E gave me a little love nudge.  I bolted upright and looked around, momentarily confused by my surroundings.  Oh yes, we’re still here I thought.

E’s name was called precisely at the appointed hour.  I gave him a quick peck on the lips, squeezed his hand and watched as he followed the nurse through the heavy metal double doors.  What lay beyond was all a big mystery to me.  I wanted to keep it that way.  Others had gone before him and they all came back okay.  So would he.

I settled in for the 2-hour wait.

I managed to read a few pages from The Color of Water before succumbing to the call of slumber.  My eyelids fluttered and slowly closed.  My head sagged heavily onto my chest like a two hundred pound pumpkin.  Not a pretty sight.  In the end, it was the drool trickling from the corner of my mouth that brought me back to wakefulness.  I wiped my chin with the back of my gloved hand, closed the book and slipped it into the side pocket of my purse.

Then I did what I do best.  Observe.  Witness.  Listen.

There was a painfully thin older woman in her seventies surrounded by her family, who were helping her fill out the daunting intake form.  Her son patiently went through the form question by question. Sometimes answering for her.  And like E and I, sometimes guessing at questions with possible multiple answers or ones that simply didn’t make sense. Close enough was good enough.

There was the young man waiting for his beautiful wife.  She was one who had gone through the double doors before E. When she emerged, he jumped up and was immediately at her side.  “Ah, my beautiful wife,” he declared as he kissed her cheek and took her hand. They sat in the hallway together for a moment, holding hands.  Then he returned to the admitting desk with questions about the “reports to the doctor.”  “Would they get copies as well?” he asked.  Once assured that all was in order, they left. He, with his arm around her waist, and she, with her head snuggled into the sweet spot in his neck.  It took my breath away.

There was the athletic looking woman with the grey hair and backpack slung over here shoulder.  She stood next to the wall with her equally fit friend and made arrangements to meet up afterwards.  There was the heavyset woman who sat quietly knitting.  The middle-aged man in the leather bomber jacket and faded jeans reading the paper.  The teenage boy with the headphones and rapper-style hip-hop jeans, who paced the hallway in step to the music he was listening to.  The young happy bubbly girl barely into her teens, who greeted her anxious parents with a big smile and a reassuring, “It wasn’t that bad.”

And there were others too who came and went during my wait that dreary afternoon in the middle of February.  All there for the same reason.

As I write this, my eyes well with tears at the memory.

The Big C is an equal opportunity invader.  It strikes randomly and carelessly.  Unapologetic and audaciously so.  Old women confused by the questions on forms.  Girlfriends with backpacks and sensible walking shoes.  Beautiful young wives with handsome thoughtful husbands.  People killing time by reading newspapers and books.  Knitters of scarves and baby blankets.  Middle-aged men in denim and leather.  Young teenagers, whose walk on this earth too new to leave footprints.  And yes, even bluegrass musicians who play the upright bass with passion and heart.

The rich.  The poor.  And everything in between.  The happy and optimistic.  The pessimist and naysayer.  The sad and lonely.  The newborn and the ancient one.  There are no precise demographics. No one can pinpoint the target audience.  By touching us all in some way, the whole thing seems so common. Perhaps that’s the divine irony.  There are no favorites here.

The thing that struck me the most while I was waiting.  Hit me in the gut so deeply and profoundly. It was what all these people had in common that I did not possess.

Bravery.

Take that Big C and shove it where the sun don’t shine.

Diaries of The Breadman’s Daughter: His Mother’s Name was Bessie.

beautiful bessie

Beautiful Bessie, the Bass Man’s Mama.

I’m taking a break from the all consuming Big C conversation for just a moment to share this bit about a sweet lady, E’s Mama Bessie.  He misses her dearly, especially now when confronted by the fragility of life.

On the day before 94-year old Bessie died, she announced to her younger son Larry that she was breaking out.

Clear out of the blue.  A declaration of independence so foreign to her nature that it was unfathomable.  Disarming.

Feeble and frail. Yet in the end, so fierce in her final conviction.

“Where are you going Mom?” he asked

“To New York City!” she proclaimed.

Bessie, who had never been more than one hundred miles from her small county home.

Bessie, who as a young girl spent a week up on the mountain, just a few miles away, was homesick and fearful.  She pined for her mother.  And missed the familiar valley farmland and apple orchards.  To young Bessie, this overgrown hill was much too high and close to the sky. Too far away from her roots and the bosom of the valley bed. It threw off her equilibrium.  Left her shaken and traumatized for life.

Bessie, whose wanderlust didn’t extend beyond a Sunday drive down to Waterville for lunch with Harlan.

Bessie, who had lost most of her sight and hearing, but none of her unpredictable wit and natural intelligence. To the end, razor sharp and fully loaded with an arsenal of quick retorts.

Bessie, who lived a simple life surrounded by “her people.”  Married Harlan and raised her boys just a stone’s throw from her childhood home.

Bessie, who never strayed far.  Always walked the straight and narrow.  Found dignity in the familiar and commonplace.

Yes, this same Bessie, on the Eve of the trip of her lifetime, revealed that she was now ready to travel.

Godspeed Bessie.