Diaries of The Breadman’s Daughter: You Could Die Waiting.

Boo looking up at E at the top of the garden.

Boo looking up at E at the top of the garden.

I have a big patience muscle.  I haven’t always.  But the older I get the bigger it grows.  It was tested fully those tedious grey hours that we sat waiting for a doctor in the ER. Each minute that passed felt like an hour.  I became the irritating kid on a road trip asking, “Are we there yet?”  Only my question that night was, “Is he here yet?”

M pulled out her Anthropology textbook and passed the time reading, listening to music and texting her best friend A.  Teenagers bring their cellphones to bed with them so they are there for each other 24 / 7. This wasn’t unusual. It’s a fascinating cultural phenomenon that is completely foreign to me, being that I’m as old as dirt after all.  I don’t judge.  It works for them.  I on the other hand, frustrate my daughter by my reckless lack of interest in my iPhone.  I use it primarily to take photographs, videos and record sounds.  I am also an Instagram addict.  But mostly the thing is either tethered to my iMac or lost in the bottom of my purse under wads of used Kleenex and other female essentials and paraphernalia.

During those wee hours of December 6, I amused myself by watching the monitor behind E.  It was hypnotic.  And almost as compelling as watching C-SPAN.  The endless minutes ticked by.  I spotted a miniature box of Kleenex on a shelf beneath the monitor and handed it to E to wipe his mouth.  He had the small bowl the nurse had given him resting on his chest to collect the steady flow of drool.  It’s funny the things that capture your imagination at times like these.  The bowl appeared to be made of the same material as take-out holders for drinks at fast food joints.  I wondered if it was sturdy enough to hold all that liquid pouring from E’s mouth. Would it turn to mush and melt all over him?  That’s all we needed on a night such as this.

Fatigue and weariness became intimate bedfellows, wreaking havoc with my emotions, which were fragile at best.  My body felt burdensome and heavy.  At one point I laid my head on the edge of E’s cot and closed my eyes.  I prayed for just five minutes of sleep. Just five lousy minutes.  Oh God, let me escape.  Get away from this insidious nightmare that held us captive.

With sleep turning it’s back on me like a jilted lover, I got up and tiptoed over to the nurse’s station.

“Do you think the doctor will be here soon?” I asked politely.

“Give it fifteen more minutes,” Nurse One replied patiently.

“My daughter has an exam in the morning and I have to work,” I said.  Not that it really mattered.  I just felt compelled to say this out loud.

“It shouldn’t be too much longer,” she assured.

“Okay,” I said, as I slunk quietly back to my chair next to E.

I was overcome by the 3Ds.  Defeated. Deflated. Depressed.

Then just like Nurse One promised, fifteen minutes later a lanky older man appeared suddenly out of no where.  The doctor had arrived. Hallelujah.

One of the other nurses emerged from behind their station to consult with him.  We were less than ten feet away so we could hear everything.  She gave him a quick rundown on the patients waiting for his attention.  There was the old lady in the wheel chair, the drunk guy sleeping on the gurney, and there was mouth guy.  Everyone was identified by their condition.  It was fast and efficient.

The doctor attended to E first.  Perhaps because he was one of the few who were conscious at that moment, or maybe my earlier query on when the doctor would arrive made me a squeaky wheel, or perhaps it was just our proximity to the nurse’s station.  It didn’t matter to me why E was the first to be treated.  I was simply grateful.

I filled the doctor in on the events that had transpired in the previous twelve hours — from the secret biopsy in the afternoon to the episode in the bathroom earlier that night.  A blow by blow account of E’s symptoms.  E interjected with the odd garbled comment.  No one really knew what he was saying.  The doctor scolded him for keeping secrets this big.

Then he asked E to open his mouth.

I peered over the doctor’s shoulder and got my first glimpse of what was causing all the grief.  E’s tongue was the size of a two-year old’s fist.

“Whoa,” I blurted. “Holy crap.”

The doctor sat down in my chair and crossed his long legs in a relaxed easy manner.  I stood across from him with M by my side.  We hung on his every word like he was our lifeline to hope and salvation.  He’d prescribe pain killers and call the surgeon who conducted the biopsy.  He teasingly proposed that M and I go home and get some rest.  E was in good hands and would be able to sleep once the medication kicked in.

Truthfully, M and I were relieved to be sent home.  The doctor was right.  E was in good hands.  There was nothing more for us to do that night.

M drove the truck home while I sunk into the passenger seat, thankful to be driven.  The rain had stopped but the streets were slick and wet.  We discussed the events of the evening. We were both a little shell-shocked.  M had been quiet and said very little during our vigil in the ER.  But in the shelter of our Ford Ranger she was able to share some of her feelings with me.

“I didn’t appreciate the nurse referring to Dad as mouth guy,” she said.

“I know,” I said.

“They shouldn’t talk like that in front of people’s families,” she said.

I understood my daughter’s hurt feelings.  But I also understood that this was just the everyday language of the ER. The nurse’s comments were not intended to cause harm. In fact, just the opposite was true.  They were merely the parlance of dispatching critical information with as much speed and economy as possible.

But I was too tired for explanations.  And she was too tired to care.

Silence filled the truck.  M and I were consumed with our own private thoughts.  As we were floating across town in a semi-dream state, I remember this horrible feeling of dread pass through my body.  Like thick black tar.  I flashed back to a year earlier.  To the week in September when our sweet little Jack Russell, Andy suffered a heart attack and died with me by his side.  E was in Nova Scotia burying his father, while M and I were thousands of miles away on the West coast.

It was just the two of us that week. Taking care of Andy. Watching him slip away. Overwhelmed by sadness. Paralyzed by grief.

This felt just like that.

Diaries of The Breadman’s Daughter: Wait This is an Emergency.

Boo and The Bass Man share a moment.

Boo and The Bass Man share a moment.

The ER is a dreary place.  Even more so at 2:00am.  It was quiet. Eerily so. I don’t know what I was expecting. A scene from the television show perhaps.  Blood, guts and gore spilling from victims of violent Chicago crimes. A young George Clooney flashing that seductive smile my way as he shouted a litany of incomprehensible medical terms at the actors pretending to be medical professionals.  There wasn’t any of that.

We spoke in hushed voices and politely waited our turn at the admittance window. Victims of our own personal trauma unfolding. No blood, just drowning in fear.  There was a surreality to the scene.  A bit like a lucid dream. We could have been waiting to buy a ticket at a Greyhound station.  Abysmal.  Everyone looked forlorn.  Like we were all buying tickets to the worst place in the country.  Fill in the blank.  We all know the place.

I remember feeling tired.  Deep into my bones.  I wasn’t up for this.  Whatever this was.

Our fellow sojourners that night were all equally fatigued and battle-worn.  There was the middle-aged woman holding her side.  She couldn’t conceal her pain.  It was written all over her face. Her son sat next to us on the bank of stiff chairs attached to the wall, secured to prevent theft I suppose. You never know in a joint like this at 2:00am.  She gave her details to the nurse behind the wicket.  I listened attentively to the conversation, as though this were my mother.  Hung onto every word like it was my business.  I’m a hopeless eavesdropper.  I can’t help myself.  It’s all fodder for stories.  You never know when or where this little scene, this bit of dialogue, these crestfallen characters will show up in my next story.  I’m always on the job.

On the other side of us was a drunk in a wheel chair.  He had “attendants” who were some sort of hybrid of a cop/EMT/ambulance driver.  It was hard to tell.  There were two of them.  Burly but soft-spoken.  They were taking a kid gloves approach with this guy but at the same time you could tell they weren’t to be messed with.  The drunk guy was paranoid.  The nurse needed to take his temperature but he refused to let anyone touch him.  He told everyone to ‘fuck off.’ I wanted to oblige but we needed to get E admitted.

At one point the drunk pulled a disappearing act while the attendants were discussing his situation with the nurse.  He vanished like Houdini through the hospital green doors right behind their backs.  There was a tattle tale, or two, in our paltry group.  When the attendants realized their charge was MIA, sly index fingers were pointed in the direction of the door.  Not a word uttered.  Just poker faces and sleight of hand as we easily gave up one of our own. I learned that waiting room bonds are easily forged and just as easily broken.  The attendants swiftly retrieved their drunk guy.  He managed to spit a few more ‘fuck offs’ before they wheeled him away.  I don’t know where he ended up. There’s always one rowdy in the crowd. He was a good distraction though so in a kooky way I’m grateful he was there.

It was finally our turn at the wicket.  I did all the talking because by this time E was incapable of doing anything but drool. Questions were answered, temperature taken, plastic identity bracelet attached to his left wrist, and then our weary little band of three followed the footprints to “room” 15, the vast repository for the suddenly stricken.  E stretched out on the narrow bed while M and I grabbed chairs and positioned them on either side.  Enclosed in white curtains on three sides, we were directly in front of the nurses’ station and had a panoramic view of the entire room.

The place was full but it too was uncannily quiet.  Occasionally someone moaned or coughed.  At one point the person next to us started to snore.  I found this comforting.  There was a scruffy bedraggled guy, who looked like he had spent one too many nights on the street, sleeping peacefully on a gurney in the open space next to the nurses.  An elderly woman was slumped in a wheelchair.  There were two little kids playing with another wheelchair nearby.  It was as if they had been scooped from a playground and transported to this place for my amusement.  It made me smile.

There wasn’t a doctor in sight.

E was hooked up to a machine that monitored his vitals.  I watched it carefully for clues.  If the top number goes up, is that good or bad?  Why is the smaller number changing constantly? What’s going on inside of E’s body?

A lovely, kind nurse came and took E’s temperature and checked his blood pressure.  She made the usual cheerful chitchat that people in the profession of caring for others do so well.  Calming.  Reassuring. Soothing.

Everything was going to be okay.

Diaries of The Breadman’s Daughter: The Demon in the Dark.

The Bass Man and Boo in our garden.

The Bass Man and Boo in our garden.

On Thursday, December 6 at 1:00am my world was rocked.  Not by my teenage daughter playing her music too loud.  Nor by the sound of a car stereo blasting its way past our quiet house.  No, this was far more sinister.  And threatening.

I woke up to the disturbing sight of E in the hallway holding his head in his hands like a pumpkin leftover from Halloween.  He must have switched on the light because I could see him so vividly heading towards our darkened bedroom. Like a zombie, one of the characters from The Walking Dead. He was stumbling and mumbling.  I had been sleeping and had no idea what time it was, nor did I comprehend the scene that was unfolding.

Startled, dazed and confused I leapt from our bed.  E stopped and did a 180, then shuffled off into the bathroom.  I followed.  I stood in the doorway and watched as he draped his face over the toilet bowl.  His mouth agape.

“What’s wrong?” I cried. “What’s happening?”

E sounded like he had a mouth full of marbles.  Saliva was pouring like clear corn syrup from his open mouth. A steady viscous stream of treacle. He continued to hold onto his head like it was a bowling ball.  Burdensome, heavy and tiring.  One false move and it could slip from his hands.  Shatter everything.

Terror-struck, I asked again what was wrong.

This is what I heard:

“Biopsy.  Cancer.”

This is the frenzied conversation that followed:

“Cancer!  No-no-no!  What do you mean?  What do we do?”

“Call 811.”

“811? What is that?”

“The nurse.”

“I’m calling a nurse?”

“Yeah.”

So I called the nurses hotline.  I was still dazed and confused.  Still hadn’t registered what was happening. Everything was haywire. A living nightmare.  A million thoughts were exploding in my mind all at once.  I went from zero to the deepest darkest scariest place in no time flat.  I lost it briefly.  And then jumped into action.  It was the only thing I knew how to do well.  Act.

In our retro 40’s home, we have a little alcove in the hall where the phone is hung.  It is directly across from the doorway to the bathroom so I had a clear vantage point to E’s agony.  It was gut-wrenching to witness my love, my brawny man, so vulnerable and in such pain.  Heartbreaking to see his beautiful blue eyes gripped with anxiety and distress.

I began to have this two-way conversation with E and the lovely (and calm) nurse on the other end of the phone.  Her voice was soothing.  Comforting.  Reassuring.

I still didn’t understand fully what was going on at this point.  I just knew it was bad.  In every sense of the word.  I explained to the nurse, as best I could, the symptoms that E was presenting.  I’ve never been adept at understanding people who don’t speak English very well.  I’m embarrassed to admit that accents are my Achilles Heel of communication.  The mumbo jumbo dripping from E’s mouth was way beyond that.  Nothing made sense.  Partly because I was in a state of shock and what he was saying was simply unbelievable.  Mystifying. Inconceivable.  And partly because E was incapable of talking.  It was like his mouth was full of bad food or dirty socks.  Every word labored.  Garbled. Distorted.

If it hadn’t been so terrifying, it would have been quite comical. We were participants in a game of charades where I had to “guess the symptoms.”  I managed to figure out that he was experiencing severe pain in his mouth.  His tongue was swollen.  He couldn’t swallow.  Saliva was pouring by the bucket full into his cupped hands.  But he had no trouble breathing.  The silver lining in the black cloud hanging over his head.

The nurse listened patiently and then offered two options.  Either call an ambulance to take E to the hospital.  Or drive him there.  Since it was E’s life I gave him the choice.

Within minutes E, our daughter M and I were on our way to the hospital.  I drove while E sat next to me in the front of the truck.  M sat in the bumper seat in the back of the cab, her University textbooks in one hand, cell phone in the other.

The nerve-wracking journey across town was long, dark and eerily quiet.  We hit every red light, which only exacerbated my frustration and fear.  It seemed to take forever to get there.

As I drove I took E’s hand and held it tight. I didn’t want to ever let it go.  Tears began to flow. Then anger.

We had a brief conversation that went something like this:

“Why didn’t you tell me you were having a biopsy?”

“I didn’t want to worry you.”

“Worry me?  Look how well that worked out for you.”