Diaries of The Breadman’s Daughter: I’m Down on my Knees Again.

Our daughter A training for The Ride to Conquer Cancer.

Our daughter A training for The Ride to Conquer Cancer.

I’ve been brought to my knees.  Countless times over the past year.  In fear. Humility. Frustration. Weakness. In sorrow. To pray. Beg. Plead. Implore.  Ask for mercy and forgiveness.  A bit of kindness.  A dose of compassion.

When I can’t stand this any more, I don’t.  I go down.

I’ve arrived at this place through brokenness and love.  Not just for E.  But for our family and friends.  All that I hold dear and want to preserve.  Ultimately it has been this love that has inspired me to fold. Cave. Crumple. Collapse. Yes, you read that correctly.  Inspired.  For I will do anything for love.  Even that.

Ironically, it is on my knees that I find the relief that I seek so desperately.  Here I am free to surrender all. Rest. Find peace. An illusive whisper these days.

It’s a peculiar thing this Cancer journey.  My heart breaks for E. For us. And all the other Big C pilgrims who know this road all too well.

I am down on my knees today. Not for E and me this time. I’m here because of a recent story in the news. A tragedy beyond words.

Last Sunday, while participating in The Ride To Conquer Cancer a young boy, barely sixteen, and by all accounts the sweetest, died.  A family’s worst nightmare.  A mother’s heart shattered.  A sunny day gone dark.

A young boy and his family doing something so good for a noble and worthwhile cause. I can relate. Three years ago our oldest daughter embarked on this extraordinary ride, for the same reason.  Just like this boy, she was on a sacred mission to do her part, to help the cause. To do something charitable for others she did not know. Altruism at its best.  I admired her courage and strength.  Her loving and caring heart.  Her passionate desire to help.  At the time, cancer had not yet crept into our lives.  It was something that happened to others.  Not us.  Not this close.  Nor this personal.

Just like this tragedy last Sunday morning, bad things happen.  Often to good people. It doesn’t make sense. Maybe it’s not meant to. I can understand this mother’s pain. Profoundly. My heart aches for her, and with her.  This is the inconsolable loss. It’s unimaginable. Inconceivable. Incomprehensible.

Yet not.

The very moment I knew I was pregnant, my imagination flooded with all the possibilities.  I not only pictured all the good and wonderful things that this child would do and enjoy. A life of dreams fulfilled. Adventures embarked.  Accomplishments achieved. But my heart, so loving and tender for this newborn child, also saw the fragility, the tenuous and gossamer nature of humanity.  The randomness with which things happened.  Both good and bad.  This heedless Russian Roulette vulnerability to our earth walk frightened me.  We’re all susceptible.  No matter what.

Ultimately, all we want as parents is for our children to be safe and to joyously experience the cycle of life as it should be.  Say farewell to us.  Not the other way around.

http://donate.bccancerfoundation.com/site/TR?pg=fund&fr_id=1340&pxfid=14708

Diaries of The Breadman’s Daughter. Mad as Hell.

Scary FaceThis post comes with a WARNING.  What you’re about to read may make you uncomfortable.  Or mad.

I’m mad.  Mad as hell.  What do I do with all this seething anger?  I could hold it in.  Suppress it like an unpleasant sneeze.  I could let it fester, bubble and boil for the rest of my life. Or I could just dump it here.

Sometimes, not all the time, but sometimes this Big C walk with E is way more than I signed up for.  I want to be the Good Wife.  The benevolent devoted soul mate.  I do.  But I’m not.  Don’t get me wrong, I am kind, compassionate and caring.  But there are times when the fire breathing dragon and the monster under the bed emerge.

What am I angry about?  That’s the thing.  I don’t even know half the time.  Everything and anything.

Am I surprised by the anger?  Absolutely.  I didn’t expect this.

It hasn’t simply been a steady build. Or slow burn. A crescendo ending with a crashing forte of rage.  Random acts of anger.  Unexpected outbursts.  Irrational displays of irritability.  Non-stop wrath or fury.  Annoyance or aggravation.  It has been all of these things. Thankfully not all at the same time.  But there are days where I simply move from one crappy angry emotion to the other.

Quite frankly, I can’t pinpoint what has my dander up and caused my blood to boil.  Why I see red.  And often black.

Some of the things I’m angry about make perfect sense.  At least to me.  Like the slowness of the medical process.  A year ago, at his annual check-up, E mentioned this irritation he had in his mouth.  Possibly it was a canker sore or a benign lesion.  Or possibly it was something bigger.  More sinister.  Who knew.  Certainly not us.  We’re not the experts.  This initial ‘mention’ to the doctor was followed by several trips to the neighborhood walk-in clinic where E was given cream to rub on the sore.  Months would pass before a biopsy was performed and a diagnosis given.  That was just the beginning.  More months would pass before his surgery.  A year later and the road ahead is long.  And winding.  Exhausting.  Draped in weary.  I’m angry about this.

Then there are the list of irrational things.  These cover the gambit, the full spectrum of the rainbow, the various degrees and levels of my anger.  Everything from the petty and trivial to the foolish and inconsequential.  The paltry, piddling and pettifogging.  All those shabby emotions that once expressed, or even thought, leave me feeling small, spiteful, mean, and just downright unkind.

Everything bugs me. Going right back to the early days. Until this present moment.

The botched biopsy.  Inconceivable. The breathtaking beauty of the Oncologist. Distracting. The daily crosstown trips to the hospital. Tedious.  The smell on the seventh floor.  Sickening. E’s feeding tube dangling from his nose.  Disgusting. The color blue of his hospital regulation issued PJs. Unfashionable. The ear-to-ear scar on E’s neck.  Frightening.  The size of his tongue.  Unfathomable. The disruption to our daily lives.  Unwanted.  The long lonely nights where sleep was a stranger.  Disturbing.  The lousy meals, fast food and frozen dinners.  Repulsive. The sound of the blender.  Irritating. The clutter, mess, dust and dog fur in E’s man cave.  Infuriating. The smell of soup in the microwave. Revolting. The way E speaks.  Incomprehensible.  The flowers and plants that need planting.  Frustrating. Taking out the garbage and doing the recycling. Enraging. Doing chores that E used to do. Exasperating. Being nice.  Impossible.

How could I think, feel, say such nasty things?  I don’t know.

I wish I could be more like Mother Theresa. All saintly and good.  But I’m not.  I’m Helen Keller before Anne Sullivan came into her life.  Groping in the dark. Punching the air. Kicking and screaming at anything unfortunate enough to cross my path. I stumble carelessly into the abyss.  I hiss and curse unapologetically. I breathe fire.  Rant and rave like a freaking lunatic.

I do all that. Then I have the audacity to shed my skin like a snake.

And start anew.