Diaries of The Breadman’s Daughter: Friday Night Dinner.

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This is a little fictional riff I wrote on routines and rituals, the dance of love, the intricacies of marriage and cooking Italian on Friday nights.

Pasta and Salad

They were back to back cooking Friday night dinner. The usual. Pasta and salad. He asked her what she was thinking. She told him the truth. He changed his mind about slicing the cherry tomato in half. Instead he turned to admire her lovely sensual back as she stirred the marinara sauce.

Basil and Oregano

His grip tightened. The sweetness of freshly plucked basil and oregano enveloped the kitchen. The spaghetti strap on her white cotton sundress slipped loosely over her tanned shoulder. Her hair scooped high in a messy tail exposed her delicate neck. He was no longer hungry. The truth had that affect on him.

Marinara Sauce

The sway to her hips as she grooved to Coldplay broke his heart. Nobody said it was easy. They got that right. Her sultry Italian lips kissed the wooden spoon smothered in steaming marinara. When they first started cooking together she would invite him to taste her sauce. But it was no longer his palate that she was seeking to please.

Steamy Sacred Ritual

She adjusted the seasoning and plunged the spoon back into the thick rich sauce. He noticed that one of her turquoise earrings was missing and this made him feel sad. God, it was hotter than hell outside and sizzling in their tiny kitchen. Yet she insisted on keeping this weekly culinary ritual. “Sacred,” she called it. Insane, was more like it.

Boiling Water

He was sweating bullets yet she was cool as a cucumber. Her full childbearing hips rotated in pulsing infinity circles. Round and round. Effortlessly sustaining the rhythm of the driving guitar riff, all the while stirring the marinara. Irony is cruel at times. Some voids were impossible to fill. The stainless steel pasta pot, a wedding gift from her parents, had come to a full boil. Spitting and splashing beads of water violently onto the stove top. Like angry tears. He could relate.

Fistfuls of Linguine.

As she reached for the pasta, he could see the thin translucent scar on the inside of her fragile wrist. Exposed and formidable. Skimming the surface of her veins. He longed to run his finger across it. Feel her vulnerability once more. He remembered how red and swollen it was at first. Like a lost river. But they were beyond that now. She measured the linguine by fistfuls. One for him. One for her. One for the pot. Just in case.

Forks and Other Kokkengrej.

She reached for the stainless steel fork that was stuffed in the pottery utensil jar next to the stove. It was the big one he used to remove the steaks from the BBQ. He knew it was bad form to pierce the meat like that. Releases their juices, she would chastise. Toughens the meat and makes it hard to chew. He knew this. But he couldn’t resist the urge to stab. Impale lifeless objects. It was in his blood. He was once an ancient warrior. She was the Goddess of basil and other fine herbs.

Al Dente.

He leaned back on the counter and watched as she stirred the pasta. He had difficulty breathing around her. There was a time when this was fun. And romantic. He closed his eyes and remembered. How she used to test the spaghetti. How she’d take a few strands and toss them across the room. How they giggled and applauded the sticky ones. How they carved their love in steam.

Breaking Bread

She insisted he cut the bread into perfectly polite little pieces. “It’s not rocket science,” he scoffed as he pulled out the scarred pine board and prepared the filone for cutting. It wasn’t all that different from sawing a piece of wood. A skill he had mastered at his father’s side by the time he was eight. She was all wrong about the bread though. It was made to be broken, torn and ripped apart. Stuffed into their mouths like savages.

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Diaries of The Breadman’s Daughter: Open Your Heart Wide and Let in the Love.

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Girl Warrior. Go where your heart leads you. And don’t run from its softness. Let it be tender. Kind. Compassionate. Gentle. Extend your hand to another and grab on tight. Then let go. Therein lies your strength.

Love again. Then again. And again. You don’t have to get it right. Or perfect. Just let love come naturally. Accept that sometimes it will hurt. Don’t let this frighten you. Don’t push it away. Or turn your back. Don’t give up on it. Most importantly, learn to recognize love when it comes your way. It doesn’t always come gift-wrapped.

Your power to love is your secret weapon.

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Diaries of The Breadman’s Daughter: What’s in a Name?

IMG_4046I have a name. It arrived in the mail last week. Bonney Lee Eva King.  That’s me. An official declaration by the Province of British Columbia on January 23, 2014. It was printed on one of those cheesy government certificates that are the same color as our fifty dollar bill. So it must be real.

Truth is, it feels surreal.  And ironic.

Surreal, because it’s been a long time coming. I was 24 when I learned I wasn’t who I thought I was. Some of you know this story from a previous blog post called, “What Happens in 204 Stays in 204 and the Fine Art of Secret Keeping.”  

The truth about my mistaken identity was revealed by the government of Canada when my ex-husband, who was my boyfriend at the time, and I decided to go to Europe. We mailed off our passport applications and within weeks he got his, no sweat. All I got was a letter from the government saying, essentially, that I didn’t exist.

Ridiculous. Preposterous. Insane. Impossible. Laughable if it wasn’t happening to me.

Little back story on the back story.

This is the conversation between me and Ma the night I called her to find out what the hell was going on. Taken from that original blog post, it went down something like this:

“Ma, a strange thing happened when I tried to get my passport.”

“What’s that dear?”

“I got this letter from the government saying I don’t exist.”

“That’s impossible.”

“Glo told me everything Ma.”

Silence followed. By a pregnant pause. By more silence.

“Ma why didn’t you just put The Old Man’s name on my birth certificate?”

“I didn’t know I could.”

So the truth was, I did exist. I just had a different last name than the one I had been using for 24 years. Legally it was same as my three older siblings. And appallingly, the same surname as their biological father, Ma’s infamous, and rarely spoken of, first husband.

Since Ma and The Old Man never married, I was their illegitimate child.  Isn’t that a quaint expression? I think all children are legitimate. And once born, belong here on earth. Precious and valued. Being a veritable product of the sixties, I like to think that I was their “Love Child.”  I can feel the earth in Northwestern Ontario rumble as the two of them roll over in their shared grave.

For decades I was crippled by an illogical fear that it would be intensely complicated, far too time consuming, and downright next to impossible to get my name legally changed. I viewed it as a colossal mess beyond anything I could handle, much less fix. Overwhelmed doesn’t even begin to describe how I felt. I was also intimidated by the  Big Government machine that declared me nonexistent at 24. This grew so epic in my mind that it prevented me from taking even the teeniest baby-steps towards change.

I was stuck.

Then something happened last summer that was a pain in the ass at the time. But turned out to be the proverbial kick in the ass I needed to transform my thinking. And take action.

I went to get my Drivers License renewed. No big deal. I do it every five years. Except this year, the Government of BC had implemented a new policy. Who knew? Not me. My bad.

Here’s my “Dummies” version. To provide better security, in a world of ever increasing fraud and deception, our Health Care Cards and our Drivers Licenses, or some other form of legal identification with a photo, are now connected. They’ll both be stored together like conjoined twins in one of those big bureaucratic organisms that is way beyond my comprehension. There’s also a hitch. Caveat. Proviso.

The names on both cards have to match.

And mine would have, had there not been an unfortunate typo on my Drivers License. I knew about the typo but it had been a non-issue until this new government policy was instated.

The plot thickens.

I also learned on that fateful summer day that if I didn’t have a connected Health Card Card/Drivers License I could be in big trouble in five years. The government health coverage, for which I have been paying up the yin-yang for years, will be compromised. Or worse. Null and void. I’m no Psychic but I see a hot mess on the horizon.

That was all it took. Scared the shit out me. Imagine a Canadian without health care. Unthinkable.

Long story short. 

I finally went through the process of changing my name. One small step at a time. In the end it was no big deal, cost a little over $300 and a bit of my time here and there. Worth every cent and every second.

Now for the ironic part.

IMG_4075It took over 20 years and a chunk of money to get divorced from my first husband. Remember him? The guy I was going to go to Europe with when I was 24. During that 20 years, E and I were living together, had a Love Child of our own and in 2011, after a painful year of litigation, were married on the top of the hill behind our home. The night before we got married we filled out the paperwork with our Pastor for the marriage license.

In the space for my name I wrote, Bonney Lee Eva King.

At the Vital Statistics Agency I learned that, in my particular case, the most expeditious way to change my name would be to use the one on my marriage license. It was a ground zero document and a good place to start.

That presented a disconcerting conundrum.

Do I take the last name of the man I just spent over 20 years extricating myself from because it’s the swiftest thing to do?  Do I take E’s last name because we are now legally married?  Or do I change it to something completely different like Zelda Zooey because it might be fun to reinvent myself as a borderline fool?

In the end, I chose the name on my marriage license. Not because it was the quickest and easiest way out of all this messy name business. But because I’ve spent more time with that name than any other. It’s become part of my identity. Without realizing it, I grew into the name. It’s me. Feels right. Resonates. When I see it on paper, I recognize it.

Besides, I love the nickname and writing handle that goes with it.

Boo King. That’s me too.

 

 

 

Diaries of The Breadman’s Daughter: Ch-ch-ch-ch-changes.

IMG_3857Over the past year I have been asked if E’s cancer changed anything.  What a preposterous question.  Of course it changed things.  It changed everything. But that’s not the question really being asked is it?  You’re all too polite and kind to ask the big messy Q. Fear of intruding. Or opening wounds.  Being considered nosey.  But this is me you’re asking. I’ve been an open book since I started this blog in 2011.  Poured my heart out. Spilled my guts. Let the cat out of the bag.  Shared my deep dark dreary thoughts in this diary.  So it’s perfectly okay to ask the real question on your mind. 

HOW has cancer changed things?

If you were to peek into our house this Christmas, you’d probably smile, possibly sigh with relief, that everything appears the same.  Sa-sa-sa-sa-same.  Same family gathering. Same festivities. Same decorations and ornaments hung on the tree.  It all looks very much like it did last year.  And the year before.  And the one before that.  Right back to when E and I shared our first Christmas together.  There have been a few different houses.  We’ve all grown older.  The kids are all now adults. There’s a grand daughter.  A daughter-in-law.  But the mood in the room is unchanged. Family jokes. Teasing. Cheerful banter.  Laughter.  Misty eyes.  Magnanimous grateful hearts.  Goodwill, and all that jolly ho-ho-ho.

Because of this ostensible normality it’s difficult at times to imagine that E is a cancer survivor.  Sometimes I can’t even believe he had cancer at all.  I think, did we really go through that?  His 23 days in the hospital, now a distant memory slowly fading to black.  I have to look at the photos that documented his stay there to bring clarity to my recollections.  Fill in the gap between fact and fiction.  Did this really happen?  And sadly, have I diminished this life-altering experience to just another story that I tell?

Yet it was real.  It did happen.  Truth is, it changed everything.

There’s the obvious things.  The loftier higher-self transformative stuff.  Gratitude for a life being spared, given a second chance.  Awareness of the fragility of our earth walk.  Delight in the small precious things.  Refined appreciation for all those we hold dear.  Joy in the everyday and the mundane.  Concern for all living creatures.  Reverence for the fleeting passage of time.  Appreciation of all that is good, for I am steadfast in my belief that there is more good than not.  Awe and wonder at the sheer miracle of being here at all.

I thank God for this metamorphosis of the spirit. For giving my caterpillar heart butterfly wings.

But there’s more to this story.  There’s the underbelly.  The ugly shit that is difficult to admit.  Even to myself.  There’s the stuff I think I’ve kicked out the door and sent slithering down the road, only to turn around to find the ugliness standing in front of my kitchen sink doing dishes.  Oh the shameful cowardly resentful thoughts I’ve had there.  The devil’s face reflected in the white porcelain dinner plate.  The monster in the bottom of the silver pot.  The creep in the cast iron frying pan. All me.

There’s the fear that grips my gut and tears at my bowels. The anger that erupts and gasps and flares out of nowhere. The sudden and unforeseen tears that sting my cheeks.  The frustration with a life interrupted.  The impatience with everything, including E.

A foul tenacious undercurrent of dread flows through my nervous system. Silently terrified that cancer will return. It’s the uninvited guest in the room. The one that has outstayed its welcome.  Can’t take a hint and leave. It’s the disturbing uneasiness beneath my flesh. The choking, suffocating, stifling vice grip. And at the heart of all this maelstrom, one thought prevails.  Will this sinister beast return and snatch E in it’s Godzilla grip forever?

At times, often when I least expect it, I’m angry. Pissed off that a year later E is still in recovery. My impatient unkind inside-voice says, ‘get over this already.’  I want things to move according to my agenda, spoiled child that I am. Not E’s natural healing process.  At the risk of sounding like Gilda Radner, ‘there’s always something.’  Rogue aches and pains throughout his body that seem to have nothing to do with cancer.  Yet in some way they do.  The hip bone is connected to the thigh bone, after all.

I cry. Like a baby some days. These crying jags are erratic. Out of the blue. Unpredictable. Indiscriminate and downright impolite. They take me by surprise. But then so did the diagnosis of cancer a year ago.

E’s personal mantra is that he “comes from good stock.”  Hardy.  Resilient. Tough as nails. It’s his Grizzly Adams fortitude and true grit that gets me through the hour of the wolf.  It’s the call in the wilderness that keeps me going. One baby-step at a time.

Fuck cancer anyway.  We don’t give up. That much hasn’t changed.

Diaries of The Breadman’s Daughter: Not the Marrying Kind.

1452388_10153580945835113_784035814_nI’m not the marrying kind. Even though I’ve done it two times. That’s the enigma.  It’s a mystery even to me. My personal paradox.  The thing is, it’s not even that I don’t believe in marriage per se.  I think it’s a fine enough thing to do, and anyone who chooses, should have that right.  No matter what.  I’m just not sure it’s something that really matters to me.  Despite having done it twice.  I’m ambivalent at best.  It’s a Sunday morning quandary.  I for one am positively stumped.

To say the two wedding ceremonies were as different as night and day, the East and the West, Chopin and The Clash, would be a monumental understatement.

The first time, I stood next to my betrothed in the muggy cramped claustrophobic office of a Justice of the Peace in the far reaches of northern BC.  There were warning signs right from the get-go that I chose not to heed.  Like my absurd fear of small spaces, yet there I was getting married in one.  Then there was the JP, who was missing one of his thumbs.  And the piece de resistance, he was wearing a burgundy leisure suit.  His name may have been Ron.  I don’t remember, which is probably a good thing.  Best that I don’t remember all the intimate details of that day.  Some situations and events are better left in a foggy haze.

By contrast, the second time with E was on top of large rocky hill with sweeping 360 degree views of the city and the ocean below.  The clouds, the sun and the large expansive sky, a natural backdrop.  Sheltered by ancient Garry Oaks, we were married by our beloved minister, surrounded by our beautiful family and friends. There was much music and laughter in the summer air.  It was lovely and romantic.  Well worth the twenty year wait.

But as wonderful as that was, it was nothing compared to T and D’s wedding last weekend.

Perhaps I was seeing through the eyes of a mother, who loves her son dearly.  Or maybe it had something to do with how much I adore his beautiful sweet “Lady”.  But the sight of these two dear ones exchanging vows stopped my heart.  Took my breath away. Brought tears of joy.

All this vow taking over the past two years got me thinking about Ma and The Old Man. They were together for over fifty years yet they never married.  They had their reasons.  We didn’t talk about it much.  For a long while, Ma carried a truckload of shame. Then there came a time where the legalities didn’t matter much anymore.  When she was finally free to marry The Old Man, she chose not to.  Perhaps the truth is, she wasn’t the marrying kind either.

No, they never said I do, in any formal way. Never took it to the alter.  Not before God. Nor anyone else. But they did take it to heart, made promises and vowed, in all the ways that count.

I do love you.  I do cherish you.  I do respect you.  I do honor you. I do want to be with you above all others.  I do want to spend all the days of my life with you. I do want to be there by your side through sickness, health, good times and bad.  I do want to hold you close to my heart and keep you forever in my soul.

They may not have been bound legally.  But they were willingly united for life by the things that matter most. Commitment. Loyalty. Honesty. Faithfulness. Dependability. Steadfastness. Devotion. Trustworthiness. Kindness. Gentleness. Compassion. Generosity. Tolerance. Acceptance. Forgiveness.

And above all else.  Love.

Diaries of The Breadman’s Daughter: 1 Million Likes and My Dad will Quit Smoking.

IMG_1700In an earlier post I shared some of the things I was angry about since this dance with the Big C began last fall.  Mostly bat-shit crazy, Mad Hatter things that have been overwhelming and downright mystifying.  The bubbling brew of oozing gooey undisguised and unrestrained emotions.  My psychological backpack is already jam-packed, yet I continue to gather more of these sour candies with each passing day.  It’s been a real slice and I am grateful to everyone who is on the road with me.  I’m especially grateful to those with large hearts and even larger compassionate muscles who haven’t judged.  Just walked the mile in my moccasins.

One of the big things I have wrestled with in this messy muddy life I lead is that there is just no way to sanitize these emotions. I wish I could.  But the truth is, they are there.  Maybe they always were and E’s cancer just brought them roaring to the surface. Demanding that I take note.  So I have.  And the thing is, I can’t paint a pretty picture.  Won’t even try.  All my life I have been referred to as “such a nice person.”  Well, there isn’t anything nice about this.  None of it.  So if you will indulge me one last purge, one final rage, one more dump about anger, then I think I’m done here.

Warning: Some of you may want to quit reading at this point.  No hard feelings. This isn’t for everyone.  I get that. You can move on and read the blogs about flour-free recipes or how to make a tee shirt from toilet paper.

There is one colossal thing that I’ve been livid about for years.  It trumps all those other things I’ve been mad about.  Makes them seem almost trivial.  Not even deep enough to be superficial. It’s the Big Kahuna of piss-offs.  I intentionally left it out of my first rant because it’s been such a sensitive thorn in my side.  And believe it or not, I was still trying to play nice in that post.  But since this is the final puke-up, here goes.

E smoked.

Not casually.  Not after dinner.  Nor while on vacation.  Not like those rare birds who bum smokes at parties but never indulge otherwise. It wasn’t a bad habit he picked up late at night while playing in bands.  E was a hard-core smoker from the time his was nine years old.  He chain smoked. Tons. It was the first thing he did when he got up in the morning and the last thing at night.  If he couldn’t sleep he got up and had a cigarette. It comforted him in ways I never could.  It was his best friend. An extension of his yellow nicotine stained fingers.

No one knows with 100 percent certainty that smoking was the cause of his disease. Even the doctors who treated him, and the nurses who cared for him, left the door open for other possible explanations.  Cancer does strike randomly.  Nonsmokers get lung cancer.  Health nuts, who only eat organic foods and run ten miles a day, get stomach cancer.  People who wear big floppy hats and cover themselves in gobs of suntan lotion get skin cancer.  We know this to be true.  Stress and inflammation are often at the heart of many diseases, from head to heel.  I get this.

But here’s the two thousand pound elephant in the room.  E stuck a carcinogenic substance in his mouth for 45 years, every day, all day.  He has mouth cancer. Mathematical equations aside, odds are cigarette smoking most likely caused this thing.

And I’m mad as hell about that.

Before our daughter was born I begged and pleaded with E to quit.  Once M was here, I tried every manipulative trick in the book.  Of course, intellectually I knew this had to be his decision. He had to hold his own come to Jesus meeting.  I had no control over this.  I understood addiction. Having grown up with an alcoholic father and personally battled with uncontrollable sugar cravings my entire life, I knew what misery looked like.  I’d grovel and drag myself through the mud just for an O’Henry Bar. I know what it’s like to wake up in the middle of the night needing to feed.  I will always be a sugar addict, whether I eat the stuff or not.  I’ve also smoked.  I know how hard it is to quit. I bawled like a baby for two weeks solid the last, and final, time I quit.  It was pathetic.  Not one of my more graceful and exemplary times.

Because I knew intimately how difficult quitting smoking could be, I exercised as much compassion and understanding as was possible with E. But I’m only human after all.  And I have my own crap to deal with. There was always this underlying resentment about him not quitting.  I often viewed it as defiance.  Not something he couldn’t do.  But wouldn’t.

There were a couple of occasions over the past 20 years where E attempted to quit.  His longest smoke-free period was about four months.  Most of his efforts were futile though.  When it came to quitting, the best he could commit to was “someday.”

Over time, my protests and admonishments ebbed and flowed in volume and frequency.  I also had a comrade, a buddy, a conscientious objector who shared my concerns.  I went from wanting to shield my daughter from a swath of cigarette fumes to having her join me on the protest line.  M and I were a united front on this issue.

At times we were passive aggressive in our objections and disapproval.  Never really coming out and saying, “You’re an asshole for treating this so lightly,” but implying it just the same, in our offhanded comments.  These ran the gambit from the descriptive, “The garage looks like a butt factory” to the succinct, “you reek.”  His habit was bringing out the worst in us.  We were evil twins.

But once E’s mouth cancer was confirmed, no one dared to say, “I told you so.”  We knew there was a good possibility something like this could happen. He was playing a risky game with much at stake.  Sad thing is, E knew it too.  That was the frustrating part.  Just like quitting  might happen “someday” so could getting cancer.

It’s a peculiar thing how love supersedes everything at times like these. Instead of thinking, “I knew this was going to happen.” All I could think about was losing him.  Nothing else mattered.  The cause was irrelevant.

Having said all that, I’m still angry.  At E for not quitting before it came to this.  At his doctor, for not ever suggesting he should quit.  At myself, for not being more persuasive, not fighting hard enough.  At God, for not answering all those millions of prayers.

Pointless self-flagellation.  I know.

One last thing.  All over social media sites, but Facebook in particular, there have been these images of kids holding signs that read something like, “My dad says that if I get 1 million ‘likes’ he’ll quit smoking.”  I didn’t know whether to laugh or cry the first time I saw one of these posts.  For the most part these are scams called “Like Farming”, which can generate tons of money for the owners of those phony pages.  Scams or the real deal aside, I found them disturbing.  Because M and I know the truth.  It will take more than 1 million “likes” to make someone’s dad quit smoking. No matter how much they love you. It just doesn’t work that way. Nothing’s that simple.

I’m angry about that too.

Diaries of The Breadman’s Daughter: Tick Tock.

The clock on the wall keeps ticking.

The clock on the wall keeps ticking.

Start. Stop. Slow down. Speed up. Wait. Proceed with caution. The traffic signs of the Big C trip. We’re forced to walk when all we really want to do is run.  For our lives.  Things take time.  There’s a process.  Procedures to follow.  We get it.  But we’re also scared out of our minds.  The Big C clock is ticking.  And we don’t know if we’re running out of time.  The meticulous orderly pace is excruciating.  Never fast enough.  At least not for me.

When we returned from our weekend getaway, things moved swiftly at first.  We arrived home late Monday night and by Wednesday afternoon we had the results of the PET scan.  The cancer was localized.  Just below the tongue. Our greatest fears, that E was riddled with cancer from head to toe, were banished.  We were grateful and did the happy dance. High fives all around.  Big sighs of relief could be felt from coast to coast.

Three weeks later E met with the Surgeon, who examined his mouth and discussed his role in the upcoming surgery.  Because this would be a 2-surgeon job, eight days later E met with the Plastic Surgeon.  At this point, it was exactly one month since receiving the results of the PET scan.  To a cancer patient and his family this is an eternity.  With each passing day I grew more anxious.  My mind went to its dark place, that cavernous dwelling filled with irrational horrors.  All the ‘what ifs’ were examined. I snooped under every rock and coaxed all the scary monsters out.  My thoughts Teased and taunted. It was crazy-making at its finest.

I think E was scared too.  In between surgeon appointments he was baptized.  This was something he had been contemplating for a few years but he became obsessed with the notion after the diagnosis.  He wanted to come right with God.  Get things sorted out between the two of them. The surgeons could heal his body but only God could repair his brokeness. This would be his first step towards spiritual healing.  Truth is, it was more of a first dunk then a step.  I can only describe it as a full backwards drop into the watery depths, John the Baptist style. E emerged gasping for air.  Regenerated.  Renewed.  Reborn.

The triad of Divine Es – elation, euphoria and exaltation – wouldn’t last long.

The meeting with the Plastic Surgeon brought E to his knees.  Shaken.  Shattered.  Scared out of his wits.  Later that evening, he described the procedure.  He shuttered and shook his head as relayed the gruesome details.  I thought I was going to throw up.  The surgery wasn’t going to be pretty.  Lot’s of cutting skin and veins here, and moving them there, and then there, and there.  Visions of Roger Ebert danced through my head. Enough said.

The day after the meeting with the Plastic Surgeon, E’s Mama died.  He got the news at 7:00pm on the Thursday and was on a plane to Nova Scotia the next morning at 8:00. He spent a week with his family and friends, buried his mother and was back on the Westcoast by Good Friday.  The next evening his band performed at a Bluegrass Fundraising event.

It was the last time he would sing.

E’s surgery was booked for May 6, which seemed like light years away. Everything was moving in slow motion.  To us, the medical world was dragging its collective feet. Our anxiety eclipsed their tempo.  We felt like lab rats scurrying through a maze of white coats and mysterious technology. Humming machines.  Little cogs caught in the big wheel.  Dancing on peanut butter.  Plenty of action but really going nowhere.

E was diagnosed the first week of December, met with the Radiation Oncologist the end of January, had the PET scan in the middle of February, met with Surgeons in the middle of March and would have the operation on May 6.  When someone you love gets the Big C diagnosis you just want the “evil” extricated from their body.  We all wanted it out.  Like Lady Macbeth, I cried, “Out, damned spot.  Out. I say!”

Yes, I’ll admit, a bit dramatic.  But still.

Diaries of The Breadman’s Daughter: Alphabet Soup of Emotions.

40456_420805066265_3600090_nI feel so many things. I’m a mixed bag of sentiments since this cancer thing with E began.  Maybe like Lady Gaga, I was born this way.  And E’s illness has just magnified, and brought to the surface, this alphabet soup of emotions.  I’m all over the place.

Soaring with the angels one minute and groveling in the mud with the devil the next. Optimistic star gazer.  Down in the dumps. Trashy and foul-mouthed.  Elated and deflated. Giddy from good news.  Depressed by delays and dark days.  Happy as a clam before it’s tossed in the chowder.  And overwhelmed by inconsolable grief.  Frightened out of my skin.  Fierce as a mother lion. A Warrior Girl.  And a motherless child. Whimpering and whining.  Feeling abandoned and sorry for myself.  Mad as hell. Patient as a saint.

I am all these things. I feel it all. Every stinking last one.  Every glorious sensation.

And I do not apologize.

These feelings are all part of this very human fragile, and yet magnificent, journey that I am on.  I own it all.  The messy and the sublime alike.  From A to Z.

A = alone + abandoned + angry + afraid + appreciated + alive
B = bad + brave + bored + bold + bitter + bitchy + beautiful
C = courageous + crappy + caring + crazy + confused + cheerful
D = depressed + deflated + despondent + despairing + determined
E = elated + excused + evolved + enervated + exhausted + energized
F = forgotten + fatigued + failure + fucked + frazzled + funny + feisty
G = good + grateful + gritty + gone + giving + giddy + glum + gutsy
H = hungry + happy + harried + here + hopeless + helpful + heroic
I = impossible + indifferent + irate + indignant + invisible + incapable
J = justified + jittery + juggler + juvenile + jackass + jealous + joyful
K = kind + keeper + knowing + knotty + kooky + kickass
L = lonely + lost + loser + loved + large + leaving + last + loving
M = messy + monstrous + meek + moved + mad + magnificent
N = nothing + nasty + numb + nowhere + neglected + nice
O = open + outcast + off + old + offensive + overloaded + optimistic
P = painful + picky + pretty + pathetic + pessimistic + patient +  plucky
Q = quiet + quitting + quarrelsome + queer + quirky
R = reasonable + raw + ready + revolted + rejected + redeemed
S = sad + silly + shitty + small + sorry + self-righteous + strong
T = terrible + tiny + tearful + tenuous + tight + tragic + tired + tough
U = unsettled + upset + unloved + unnoticed + used + ugly + up
V = vulnerable + vacant + vague + vain + victorious + valued
W = worried + weak + wanting + wonderful + weepy + warrior
X = x-rayed + xeroxxed + x-rated
Y = yearning + yucky + yappy + yeller + yellow + yummy
Z = zombie + zapped + zilch + zero + zip

Diaries of The Breadman’s Daughter: Today.

E relaxing by the pond with Coco and Rusty.

E relaxing by the pond with Coco and Rusty.

I usually like to keep a bit of time and distance between me and the stories I tell.  Sometimes years like I have with the Diaries of The Breadman’s Daughter.  With others, it’s weeks or months like this blog about me and E and the Big C. This is the psychological and emotional space I need to tell a good story.  It’s the way I work.

Time allows me to separate myself from the story so that it doesn’t erode into sentimental sop.  Don’t get me wrong.  I love a good tear jerker.  I just don’t intentionally write one.  I’m not here to emotionally manipulate.  It is my desire to share what I know, what I’ve learned on this journey.  At best, it may only be an enjoyable read.  At worst, a waste of time.  But if it informs and illuminates, touches a heartstring, resonates with some truth you hold dear, then I’ve accomplished more than I could have hoped for.

My story is your story.  We’re all in this together after all.  You may not have cancer, nor be married to someone with it.  You may be lucky and this disease hasn’t touched your life in any way.  But I doubt it.   That’s not the point.  This isn’t about the disease, you see.  It’s about two people and their family and friends and community.  It’s about you and me.  All of us.

Oh yes it is my dear ones.

Because we’re all human and this is a very human story.  Not a tragedy.  Although sometimes it is heartbreaking.  It is often fraught with folly.  And great big belly laughs.  Tears are shed.  Curse words are spat like mouldy grapes.  But there’s a whole lot of loving going on too.

So today, Saturday, April 6, exactly four months after my world was rocked I am going to do something I typically don’t do with my storytelling.  I’m telling you how it is now.  On this day.  No time.  No distance.  No space between me and the story.

This morning E and I were in the kitchen making coffee and chatting idly about the things we had to do today.  For reasons I’m not even certain of – maybe I was born with it or maybe it’s Maybelline – I turned to him and said the following:

“I know nothing can compare to the way you feel.  Part of me can’t even imagine.  But I just want you to know that for the people closest to you.  It feels horrible.  Awful.  Everyone expects you to feel like crap. You’ve got cancer for Christ sakes. But I feel like crap too.  I’m worried and exhausted.  I’m so depressed.”

E slumped in the chair and said, “I’m worried too.  I wake up at three in the morning and I can’t sleep.”

“Neither can I,” I snapped.

But what I wanted to say and couldn’t because he’s the one with cancer and that trumps everything: “You just don’t get it. Yes, you have the disease, but you don’t have a monopoly on feeling bad.”

“I’m depressed,” he sighed.

“Some days I feel like I’m hanging on by my fingernails.”

And that was the end of the conversation.  Maybe hanging on by your fingernails trumps everything.

There you have it.  Four months in and the truth is, we both feel like crap.  Not all the time.  The mornings are the worst.  Fortunately life distracts us.  We carry on.  Get on with it.  Try not to wallow.  Nor allow this thing to swallow us whole like a snake eating a rabbit.  Take the best part of us. We ‘do not go gentle into that good night.’

This afternoon we took our dogs for a walk around the lake.  It was good.  As we walked the trail, I breathed in the beauty of the world surrounding us.  The trees were green with newness.  Life was exerting itself everywhere. Hope filled the clouds above.  The breeze whispered sweet nothings in our ears.   You have today, it said.

There wasn’t a trace of cancer anywhere.

Diaries of The Breadman’s Daughter: Take Two. Let’s Try This Again.

E and his band mate A wait to go on stage.

E and his band mate A wait to go on stage.

Sometimes I just want to start over. Tear out the page. Crumple it up.  Toss it into the nearest garbage can. Press delete. Delete. Delete. Begin again. Change everything. Rewrite the story.

Never have I wanted to do this more than with this story about E.

After the holidays, we settled back into our old familiar routine.  The one we enjoyed before the thunderclap of cancer struck. It was as if all that crazy-making stuff never happened.  Monday to Friday focused around our work.  Weekends were filled with errands, chores, family meals, music and church.  Smack dab in the middle of January we celebrated E’s birthday with joy and profound gratitude.  After the roller coaster ride of December this mundane life of ours felt good.  Humdrum was welcome.  The unremarkable everydayness had lulled us into believing that things were back to normal.  It was life as usual.

Not so.

Truth was, E’s appointment with the Radiation Oncologist was scheduled for the end of January.  There was no denying, nor getting around that.  This was “the meeting” where we would get the lowdown on this scary disease that had invaded E’s body.  The results of the CatScan and the biopsy would be explained to us.  This was where rubber would hit the road.

The Cancer Agency sent E a package of information to prepare him for this meeting.  He filled out the forms, read the brochures, watched the DVDs and composed a list of questions.  I borrowed a snazzy digital recorder from one of my colleagues to tape the session.  We were prepared.  At least so we thought.

I met E at the Cancer Centre on the afternoon of his appointment.  It was a mad rush from work to the Centre with five minutes to spare. I flopped down in the seat next to him expecting a long wait.  My plan was to scarf down a sandwich before meeting with the Oncologist.  Two bites into my cheese and lettuce and we were called.  I quickly stuffed the sandwich back into my bag and followed E and the intake nurse into “the room.”

We exchanged pleasantries with the nurse while she took E’s temperature and checked his blood pressure.  A few minutes later the Oncologist appeared.  It was one of those jaw dropping moments.  She was nothing like what I was expecting.  I was thinking someone more like Einstein or the original Dr. Who.  Someone who looked like they could cure cancer.  Not pose for the cover of Vogue.  She was drop-dead gorgeous.  Tall, slim, perfect skin and hair.  Beautiful smile.  Stylishly dressed from head to toe.  And by toe, I mean kick-ass high black leather boots.  She was lovely in every way and immediately put E and I at ease.

I switched on the recorder.  She began with a round of standard questions to determine E’s overall health.  What other things besides the mess in his mouth were causing him grief.  E rhymed off the litany of ailments that had been hurting, aching, paining, irritating and gnawing at him over the past two years.  It reminded me of the Skeleton Song we all sang when we were kids.  With the toe bone connected to the foot bone.  Was there anything that didn’t hurt I wondered?

After the inquisition, the Oncologist probed and prodded his neck and throat checking for lumps and bumps.  Looking for signs.  Was the cancer on the move?  Spreading like wildfire to the rest of his body or behaving itself and staying contained in the front of his mouth?

Modern medicine is full of wonders to behold.  Technological marvels that are mind-blowing.  Like the probe that allowed us to see inside E’s nose and throat.  More like science fiction than science seeing this strange interior world so close-up and personal.  Beyond the uvula. It reminded me of the Biblical story of Jonah and the whale.

After the examination the doctor discussed “the next steps.”  This took both of us by surprise. We thought we’d be leaving with a surgery date and a pep talk on how this would soon be behind us.  A little inconsequential blip in our lives that would be over with a quick snip and a stitch.  Not next steps.

E wearing one of his favorite Hawaiian shirts.

E wearing one of his favorite Hawaiian shirts.

What we quickly learned was that the results from the CatScan and biopsy weren’t one hundred percent definitive.  Inconclusive.  They didn’t know the full extent of the disease. Whether it had spread to other parts of his body.  So this uncertainty meant more testing.  Big Kahuna examinations.  MRI and PET Scan.

The drive across town to home was dismal.  Again I was alone in the truck.  A Gloomy Gus.  Consumed with worst case scenarios.  The wind had just been kicked out of our sails.  We had just spent the month believing that things were going to be okay.  E was back to normal.  He was feeling great.  Healthier than he had in a long time.  This wasn’t such a big deal, we thought.  Certainly not deadly.  Nothing to worry about.  A piece of cake.  Walk in the park.

For two smart people, we were seriously naive when it came to the Big C.

Back at the house, E and I spoke briefly about the appointment.  I asked him how he thought it went.

“Not good,” he said.

Then I knew we were in big trouble.